Chill flushing?

[penelope2]

Hi all.

Well I have had these for at least 20 years!

It's really difficult to describe but sort of the opposite to hot flushes (the more mature ladies will understand) that last a few seconds, sometimes 2 or so a day or could be more. They feel like goosebumps all over and not associated with the cold. I have always thought they could be an immune response to something???

I have a vestibular dysfunction and ataxia, it is difficult to know which one is more a problem and don't think my neurologist does either.

Just wondered if anyone else has this problem too.

Take care everyone x

[wobblybee]

Hi Penelope🙂 When I find something intriguing I always google for answers, and this is what I found....

As you may have noticed, goosebumps tend to form when you're cold. They also form when you experience a strong emotional feeling, such as extreme fear, sadness, joy, and sexual arousal. Goosebumps may also occur during times of physical exertion, even for small activities, like when you're having a bowel movement.healthline.com › health › goos...

🙂 I have Vestibular problems, which I find are more disorientating than ataxia itself. Sometimes my temperature can fluctuate several times a day, and when I’m cold it takes me ages to warm through. Extremities such as nose, hands and feet can feel icy cold even if the rest of my body is comfortably warm... We have central heating on, and I can be huddled under a blanket wearing layers of clothes..😶

[penelope2 in reply to wobblybee]

Hi wobblybee, thank you for your interest.The thing is I don't think it is to do with the cold, emotional etc, even though I feel the cold like you. It can happen often after eating and I am beginning to think it is to do with this.

Maybe an autoimmune thing????

Have not spoken to anyone before with vestibular problems and ataxia.

Neurologist said for me that probably the vestibular problem has lessened and ataxia is now affecting balance etc more.

Not sure, my experiences have led me to think that he doesn't really know. Hoping for an appointment at London clinic to find out more. Probably a long wait though??????

Take care x

[wobblybee in reply to penelope2]

🤔 For a definite answer I think this is best discussed with your Neurologist, you may get a clearer picture at your London appointment. I was referred to Neurology at Queen Square, in my case it didn’t result in an accurate diagnosis, but I did get a referral elsewhere which was somewhat helpful. My DNA is kept ‘on file’ to be checked against future findings of Episodic Ataxia.

I’ve had a lot of eye problems, but also a lot of helpful treatment 🙂 Balance issues due to Cerebellar Atrophy have been worsened by BPPV (Benign Paroxysmal Posterior Vertigo). These two things combined seem to outweigh any other general ataxia symptoms.

🙂 I hope you don’t have to wait too long for your appointment.