Another Question: Hi The only things I appear to... - Ataxia UK

Ataxia UK

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Another Question

weegiz12345 profile image
20 Replies

Hi

The only things I appear to be asking are questions that relate to ataxia symptoms. It makes me feel better knowing the things that happen to me are happening to someone else with the dreaded A. I don't feel as alone. Here goes, does anybody else get cramps in their legs, sometimes during the night my leg cramps and for a few seconds the pain is excruciating but then it dies down. All the muscles in that are hard in that area. Sometimes it can be my arms or torso but mostly my legs and hips.

Louise

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weegiz12345 profile image
weegiz12345
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20 Replies
springlove profile image
springlove

hello, I get cramp in my legs at night. I sometimes stretch them because I feel so scrunched. Getting out of bed and standing for a while gets rid of the cramp

Jean

weegiz12345 profile image
weegiz12345 in reply tospringlove

Thanks for your advice Jean I'll try it

Veteran250 profile image
Veteran250

Hi Louise.

I used to get leg cramps and sometimes foot spasms where my foot/leg would kick involuntary...... my brother suggested I drink.....Indian Tonic Water..... my leg cramps dont happen very often now, you can get the Indian Tonic Water in most big supermarkets, in different flavours, my favourite is lemon..... try it! 🌞👍😘

Don😀 Xx

weegiz12345 profile image
weegiz12345 in reply toVeteran250

Hi Don One of my pet hates growing up and my mum still teases me about it today is tonic water. I hate it but now you've suggested it I'll try a flavoured one :-) how do you get the emojis?

Veteran250 profile image
Veteran250 in reply toweegiz12345

At the bottom of my keypad under Z is a key with a smiley face(emogi) click on that....... I use an iPad! You have used an emogi in your last sentence ? 😀😘👍

weegiz12345 profile image
weegiz12345 in reply toVeteran250

Hi Don I didn't use an emoji as such just 3 seperate keys and didnt think it would make one. Hay ho it did, will use my ipad at home cos have only got my computer keyboard at work, no emojis :-(. Sorry to hear about your fall last night. Keep smiling as you always do :-)

RN12120 profile image
RN12120

My mother has kyphoscoliosis and suffers with flare ups of sciatica episodically where she describes what you have been experiencing. She takes anti-inflammatories and has been prescribed muscle relaxants to help with that as her spasms and leg cramps are as a result of nerve impingement. I also know that the GP’s can prescribe quinine tablets to help with leg cramps at night (which is found in tonic water but good to know if you don’t like the taste of tonic !).

Veteran250 profile image
Veteran250 in reply toRN12120

If you dont like the taste of tonic water, get one with a flavour in it???

weegiz12345 profile image
weegiz12345 in reply toRN12120

Hi I have always hated the taste of tonic water but on yours and Don's advice will try a flavoured one, thanks.

claire01 profile image
claire01

I agree with Veteran250 I too used to get cramping, drinking tonic helped me 😊

Rhiny99 profile image
Rhiny99

I have not been diagnosed with Sca, but I have a relative with Sca(type unknown) For the past couple of years, I would get horrible leg cramps at night. I started taking magnesium citrate at night and this helped tremendously. I no longer get cramps.

I think I have early signs.....I can’t do tandem walk, gave difficulty balancing on one foot and am tentative walking on stairs- going down. Just from looking at me...I look fine, but deep down, I know i have it. But I’m in my late fifties, and my sister has had it since her thirties.

Hope you find relief!

weegiz12345 profile image
weegiz12345 in reply toRhiny99

Hi I'll try your remedy, thanks. I hope you find out you've not got Ataxia but if you do find out you've got it please keep coming on here it has helped me tremendously. I know how it feels to look ok but you know there's something a miss. I think folk looking at me now would only think her walkings a bit off but inside you know there's something wrong. Take care.

ConfusedAtaxian profile image
ConfusedAtaxian

I agree, I get terrible cramp mainly in the legs (even my ankles or feet) but standing helps. It hurts a bit less than normal cramp but I have to get out of bed.

KiwiBob profile image
KiwiBob

I used to get cramps in my legs when sleeping. Since I have gone on a gluten free diet and I have started drinking more water it doesn’t brother me to much now. I have also noticed my foot spasms have decreased some what.

weegiz12345 profile image
weegiz12345 in reply toKiwiBob

Hi Thanks for your comment, which Ataxia have you got?

KiwiBob profile image
KiwiBob in reply toweegiz12345

They don’t no. I am at Sheffield Ataxia Center at the end of October. I could be gluten Ataxia.

weegiz12345 profile image
weegiz12345 in reply toKiwiBob

Hi KiwiBob I live in St Andrews but am originally from Sheffield, my mum still lives there so we visit quite a lot. Hope you get an answer.

KiwiBob profile image
KiwiBob in reply toweegiz12345

I am travelling down from Scotland.

Litty profile image
Litty

I like tonic (lime flavoured is my favourite). But sometimes I get cramp at night, normally a short walk to loo sorts it, otherwise I kneel on our sofa and go up and down x

weegiz12345 profile image
weegiz12345

Thanks for your advice Litty

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