Log in
Ataxia UK
2,715 members2,553 posts

Legs work?

Do folks sometimes have trouble making their legs work? x

21 Replies
oldestnewest

I love this post 😊. I'm wobbly at times

1 like
Reply

yey! I am so glad not alone - unfortunately happening more often - so embarrassing they just will not work - some days fine x

Reply

Kitty, my legs don’t take notice of my brain! In fact my body goes in a different direction sometimes. I feel like I’m being possessed lol, I stop and let each catch up with the other. People stop and ask if I’m alright 😦

5 likes
Reply

Glad you are ok - good they notice lol x

Reply

Yes, often when I try to walk after sitting down my legs won't work. Its as if they don't know what to do.

3 likes
Reply

Tell me about it!!

1 like
Reply

There r times when one foot seems glued to the ground and wont budge. Ive been told by PTs that this can be a body's way of expressing fear or a case of the foot carrying too much weight. My legs wont jump, jog but they will march, walk (slow ly ) and climb stairs (very awkwardly) The automatic pilot is off definately xxx N

3 likes
Reply

Really very sorry to hear so many experience the same but so pleased to hear normal for us lol xx

Reply

Sometimes feel like I'm made off jelly 😁😁

Reply

Hi Litty. Yep, everyday. Feel like a baby learning to walk. Legs splayed (as if I am wearing a nappy!!!), one foot 'drags' etc. :( Sometimes when I stand I have to wait to get control before I start to walk. Also, balance is off and use stick indoors and crutches when out else I am like a 'sober drunk'...lol.

GOOD LUCK :)

2 likes
Reply

Dear Litty,

What you are experiencing is the Ataxia kicking in. I have EA 2 (episodic Ataxia) and it is very common. When I used to teach and had to chair an IEP meeting for over an hour; I would lose my balance getting up from the conference table. Very stressful and upsetting. Parents and colleagues would think that I was drunk 😵.

Take care,

HS

2 likes
Reply

It is problematic and embarrassing, at times, when my legs just won’t work well for me. Ataxia, combined with Parkinson’s, sometimes makes it very difficult for me to walk very far, if, at all.

Reply

Hi Litty

All part of Ataxia. The part of your brain that controls your body movements is not sending the right messages, if any.

I am falling over all the time.

Dave

Reply

One more thing....Dr Thomas Clouse makes the point that intensive exercise can override the damage. N Some PTs also seem to believe this.

Reply

Yes I have that problem, especially when I have been still for a prolonged period. I was diagnosed as having 'Hereditory Spastic Parapresis' and Ataxia (lucky me). Apparently it's a rare genetic condition that I got from my mom & dad. No treatment yet. Speak with your Neulologist about testing if you want.

1 like
Reply

I have exactly the same condition, well thats what the Sheffield hospital specialist worded it. And I am the same, sat down for long periods, manage to get of the sofa, stand there for a moment, the try and get my foot to turn, and wobble of to make a half cup of coffee, half a cup, as I used to spill most of it before. And had too pack in work (58 yrs old), as being a butcher, it was getting dangerous, especially on the wet floors we had

Reply

Hi, I live in West Mids, where are you? Your the first person with the same condition that I have ever spoken to.

Reply

welcome to the club, its small but there are a few of us. I live up in Harrogate, north yorkshire. I was diagnosed back in 2014, I was told then that there were just a few in the area

Peter

Reply

No I gather there aren’t that many of us are there! Do you know of anyone else?

Reply

not a soul, there is just me and the family, and they kind of understand it (SPG7)

Reply

That’s exactly the same as me.

Reply

You may also like...