Hi everyone I have just joined. I am having lots of tests at Kings Hospital in London. They think I have a genetic ataxia and now are trying to diagnose the type of ataxia. I suffer a lot of fatigue, balance issues tremours in my legs, arms and have started in my head. My face feels numb. And my mouth quivers. Loss of hearing too. I get very down some days. And frustrated as I have to pace myself.
Take Care
Hi, I have been Diagnosed with C.A for three years, WHAT I understand there are near 100 variations of Ataxia ie different symptoms etc and these symptoms types amounts are rising. I recently had a paralytic attack of my legs which seems unheard of.
a blood test revealed my type. Hereditary is that the same as genetic? Ataxia does not skip a generation. Mother's side of the family were indicators.
HTH
Hi
As I understand hereditary and genetic are different but can overlap.
Hereditary is a trait ie mannerisms , facial similarities etc (things passed down by your parents) and genetic is a gene fault but they can be passed on by parents so they can be the same thing but are often mistakenly considered to be the same thing.
Hope this makes sense 🤗
Dear Ruth, A HUGE welcome to this site! I have Sporadic Cerebellar Ataxia (unknown cause, progressive, symptoms 24/7) diagnosed thirteen years ago. Ataxia is very frustating, as well as challenging! My best to you..., ;o)
Frustrating is the operative word.
Jonathan/media/ataxia
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