Getting worse

[explosion]

Hi all - this is rather an embarrassing problem. I was diagnosed with FA 12 years ago and lately I h developed bowel incontinence. It is really affecting my day to day life and I worry about going anywhere. I avoid socialising and it is really getting me down. Does anyone else have this problem or any advised to offer? Thanks

[HarryB Administrator]

Hi expolsion

Thanks for your post. I understand how embarrassing this must be for you but you have made an excellent move in asking here for advice. I would urge you to read the following link and get advice from people who know you so that you can be assessed properly in order that you get the best possible treatment for you.

nhs.uk/Livewell/incontinenc...

Best wishes

Harriet

[february]

Dear Explosion, I'm so sorry you're having this problem! My advice would be to talk with your doctor/neurologist, as they may be able to help you! In the past, I had some bladder incontinence, but eventually had surgery and am much better now! My best to you..., ;o)

[LOVELY_1]

I have C.A. and also Ulcerated Colitus so I think you must really see your G.P.

[barb1228]

i HAVE THAT ALSO and have full bowel movements. The trick is to try to train yourself to empty at a specific time during the day. mY DOCTOR SAYS USE SUPPOSITORIES to empty and let her know how it goes. I will try but I am not too optimistic. Walking seems to stimulate it and it seems to come over a few hours. Will you please let me know if you are successful and what your doctor proposes. Thank you.

[angelite]

Hi there,

I was reading a post on the MS site where a lady in USA had elective stoma surgery for her issue, as all other methods had failed to help. I often have urgency but can also go the other way and get constipated, causing random leakage. Even double dosing on Senna/ using suppositories is not reliably successful. I have worn pads for urinary leakage for years so they now serve 2 purposes ! I really hope you can get some help for this - it is a miserable, limiting issue to have to deal with : (

Kind regards, Angela ( PS. I'm suspected MS, ataxia is a part of my symptoms ) x