hi.

[gary1974]

Hi, my name is Gary.

Just been diagnosed with Ataxia, was wondering if there is anyone on here from the Glasgow area in Scotland

Many thanks Gary.

[tedjohnson]

Hi Gary

If you phone Ataxia uk on 0845 644 0606. Mon to Friday. 10. To. 4 pm. (I think'!)

They will put you in touch with the nearest support group and also send you a

Very good pack. I love near London so rather a long way to travel !!

Very best wishes. Ted

[gary1974 in reply to tedjohnson]

HI Ted,

Many thanks for the reply, This is all new to me and hope theres some people who can explain some of the issues I have.

[wobblybee]

Hi Gary, welcome😊,

If you you'd like to log onto ataxia.org.uk then click on supporting you, click on branches and support groups. There's a full list of contacts and it looks as though one is in striking distance😊 xB

[gary1974 in reply to wobblybee]

HI many thanks for the reply, I will check that out asap.

I am just trying to master this site as I would to chat with people who have the same issues as me. lol

[wobblybee in reply to gary1974]

Before being diagnosed hardly any of us had heard of ataxia😏 From personal experience I can say that it makes a huge difference just being able to talk to somebody who knows where you're coming from.

😊xB

[gary1974 in reply to wobblybee]

Yeh thats what am hoping for too. I was told 3yrs ago I had Cmt, Then this year I was sent to London to see professor Mary Reilly and she told me I had cerebellar atxia.

[wobblybee in reply to gary1974]

You've had a bit of a trek😉 We have an Ataxia Centre here in Newcastle but sometimes you have to travel in order to see the right expert😊 Familiarise yourself as much as you can about ataxia, it really does help 😊 xBeryl

[margaretm]

Hi Gary,

I live in the North West of England, 200 miles from you, but have lived in Glasgow for four years- great place!

Ataxia is rare and takes many forms. Being diagnosed is a shock, but with the support of friends who have Ataxia, you will begin to digest the issues and get a wider picture.

I do not like it, personally, when I am described as 'disabled'. I am a person who has a disability, but it does not define me. I am still a wife, mother, grandmother, sister and friend.

Good luck, Gary.

Margaret

[gary1974 in reply to margaretm]

Thanks for the reply.

[Jim95 in reply to gary1974]

Gary my number is 07516103853 I am not very good at the talking on the phone but texting I can do

[Cally151090]

Hi Gary

Im from Dundee so not too far away!

[gary1974 in reply to Cally151090]

Hi, thanks for the reply am in Kilmarnock Ayrshire.

[lindadoc]

Hi Gary, were from Clydebank, just outside Glasgow, my son has Ataxia and we attend the West of Scotland Ataxia Branch, it's held in Maryhill, usually once a month. where in Glasgow are you.

[gary1974 in reply to lindadoc]

Hi, thanks for the reply ive heard about the meets in Maryhill.

Am in in Kilmarnock, Ayrshire. How do I find out about the next meet.?

[lindadoc in reply to gary1974]

go onto Ataxia Uk and you should find the e mail of Alison Love who is the main contact of the group. Think we have other members from Ayrshire.

[gary1974 in reply to lindadoc]

Thanks, I will send an email tomorrow to her.

Many thanks

[february]

Hi Gary, So sorry, but I live in the US, in the State of Michigan. I just want to welcome you to this site! Also, there is a site in the US called "Living With Ataxia" that you might like to join. For more information the "National Ataxia Foundation (NAF) here in the US is great! Anyway, I hope you find a support group close to you to attend. Ataxia is extremely frustrating and challenging, so having others to talk with helps you feel less alone! My best to you...,;o)

[Jim95]

Hi Gary would you like to meet up I drive

[gary1974 in reply to Jim95]

hi, where are you from?

[Jim95]

Rutherglen and you