Ataxia UK

Hi, does anyone suffer from head nodding. Mine happens several times a day, when I get up or move. It started 2 months ago. My neurologist

says. Botox. in. the neck might help. Any one had this?

Also. It has been suggested that I use an Oswestry standing. Frame a I can' walk any more , use a wheelchair all the time. The physio thinks this might help me to walk a bIt once I can stand. Stood in it for 15 mins and felt almost human again

5 Replies
oldestnewest

Hi Marygate:-)

I've had Botox injected into my eye muscle and I've been

told it has many medical uses:-)

I had to google Oswestry Frames, what an amazing piece

of equipment:-) xBeryl

Reply

Hi Marygate I have had head shakes since my stroke, I now it can be used for many things like wibblewobble I am having it in the eye. My walking has also detirated and I many use a wheelchair now but can do a few steps on crutches, I have been told about botox in the leg muscle

Reply

hi Marygate....sorry friend, I'm not familiar with that type of Ataxia....I wish you well

Reply

Standing frames are excellent. They improve circulation a lot if used daily

Reply

Dear Marygate, I don't have head nodding, but have heard that some people with ataxia suffer from this. I have also heard (as others have said) that Botox can be helpful. I didn't know what the frame was, and googled it. Fabulous! I can see why it would be good for a number of "physical"reasons! My best to you..., ;o)

Reply

You may also like...