I have been trying to get a diagnosis for my problems for18months. It started Dec 2011 I had flu/ chest infection. I won't bore you with all my symptoms but the main ones are inability to walk at a normal pace, fatigue and balance problems. I have seen 3 neurologists now waiting to see another one in Sheffield to confirm gluten ataxia.
Does anyone else have gluten ataxia and if so how long did it take for you to be diagnosed and what treatment, if any, have you been given?
I am finding it very hard to cope with all the uncertainty and the fact that this illness, has made me unable to continue working. Waiting for a decision re ill health retirement from the NHS. Looking forward to talking to people who understand the difficulties that I encounter.