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Nebuliser question

Moonmoo22 profile image
12 Replies

Hi everyone

I'm struggling to get my asthma under control and my husband has bought a well reviewed nebuliser and saline solution for me - I am interested to know if this is of any benefit and tips etc?

I have no idea how it works but willing to try anything!

Had a terrible night of asthma post flu jab!

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Moonmoo22 profile image
Moonmoo22
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12 Replies

You should not actually use a nebuliser unless it has been given to you by a respiratory specialist.

Blue inhalers are regarded as far more effective nowadays.

I am not saying I agree with this but I am just stating fact.

Kelshaw2011 profile image
Kelshaw2011

Hi moonmoo22

I have severe brittle asthma and in and out of hospital with life threatening asthma every six weeks it took a long time for my consultant to agree to a home nebuliser and my gp prescribes the nebule solution to go in it as this is only on prescription I found that saline very rarely helps me most consultants do not like patients to have home nebulisers as they say 10 puffs of salbutamol through a spacer is just as good as a nebuliser my advice would be to speak with your consultant regarding the nebuliser and have a plan written up for how many times you should use it in a day before seeking medical advice as some people leave there asthma till it's at a critical stage thinking that if they have a few nebs then they will be fine you should also be shown the correct way to use it. I also had my flu jab a few days ago and have been struggling and now having more nebulisers throughout the day but if I have to take more than six a day it is time for me to head into hospital as I know then I need intravenous aminophyline (I take this tablet form every day) magnesium hydrocortisone and Iv salbutamol. When having severe asthma symptoms remember a nebuliser isn't always a cure it just relieves symptoms for a short period

Good luck and stay well

Xx

Moonmoo22 profile image
Moonmoo22 in reply to Kelshaw2011

Thank you so much!

I am just at a loss. They are saying it's allergy related - I am taking 2 x anyoi hestiamines a day, solbutol when needed and clenil 100 - 4x morning and night.

I have a couple of good days but mostly bad!

Sinuses are really painful too.

I've had anti biotics and also predislone for 5 days which did help slightly but it was short lived!

I'm at a loss and very fustrated! X

Ps I have only recently been diagnosed - I had asthma as a child which went away and seemed to re appear along with hayfever in July!

Kelshaw2011 profile image
Kelshaw2011 in reply to Moonmoo22

Maybe you need a change of medication as I have had my inhalers changed so many times tryin to find the right one for me saline nebs don't need authorising by a consultant only the medication nebules maybe try a saline nebuliser and see if it makes any doference to your symptoms you can always look on you tube to find the right way to use your nebuliser also

Xx

Chloe2057 profile image
Chloe2057 in reply to Kelshaw2011

This is excellent advice!

Moonmoo22 profile image
Moonmoo22

Thank you so much for replying!

Do you think the saline neb is any good? Any tips on how many times a day and for how long etc!

Chloe2057 profile image
Chloe2057 in reply to Moonmoo22

I really do worry for you in so much as l think you need to be provided with the correct medical advice preferably by a Respiratory Consultant (ask your Doctor for a referral) as to exactly what you need to take, how and when. It seems you have been left to get on with it alone. Please make an appointment to see your Doctor who can refer you to an Asthma Nurse Specialist whilst you await a Consultants appointment. 💕 Chloe

Chloe2057 profile image
Chloe2057

Hello Moonmoo, l have suffered asthma since the age of 5 l am now 60 (scream)! I live in the UK. That may make things different on two counts. Age and Country? Also please remember that everyone’s asthma affects them differently so what you read on here use as general advice and think carefully before applying it to you.

I note that you say your husband has recently bought you a nebuliser. Was this on the advice of a Doctor? I just ask this for one reason only, you must be really really careful and l cannot stress this enough when using nebulisers and the solutions that are made for them and your condition. Saline solution is used l know for some people to “loosen up phlegm” that is restricting your airways. However it is not a “bronchodilator” which is a prescribed medication, for example often termed Salbutamol and the inhaler version being called Ventolin. This is available in nebules small plastic containers to be pierced and emptied into the container of a nebuliser mask unit) This medication taken via a nebuliser will last longer than a couple of puffs of a Ventolin inhaler even if it is used in a “spacer device” because of two reasons: the deeper delivery and the volume.

Nebulisers are life saving and used in the correct way with the correct information they can be life saving and also save periods of hospitalisation. They can also be used with other solutions too. And for other conditions. However, they should be used with extreme caution and following medical advice because used inappropriately they can also kill. I am not going to mince my words because they can cause a pneumothorax to occur. You may lose the ability to breath altogether if the solution and dose is not correct for you.

Many Doctors in recent years have advocated on the side of extreme caution even when supervising patients medication and useage. This has been entirely unhelpful and proven really difficult for those who use them responsibly.

You may well need a nebuliser but PLEASE if you do at least seek a Doctor or Consultant opinion about the correct solution, the doseage and the appropriate time to use one. Really read up on them too from a reliable responsible provider for example MEDIX who actually supply to the medical profession and hospitals.

Yes! They save lives! But get all the information first PLEASE and if your breathing starts to deteriorate SEEK MEDICAL ADVICE immediately! It’s only because l really DO care l have written such a long post!

Please let us know how you get on. It would be really interesting to have other nebuliser users opinions too, so if you are out there guys let’s hear from you too 💕 Chloe

Moonmoo22 profile image
Moonmoo22

Thank you! Don't worry, I'm not going to use it x

Emily-G profile image
Emily-G

Hi, I have had a home nebuliser for a couple of years now. The consultant organised the first lot of nebules and now I get them on repeat from GP. I don't use them every day and if I need more than 3 or if they aren't lasting I have to go in and get checked out. I keep a fairly close eye on my peak flow. I think part of the reason I have the nebuliser is how fast my peak flow drops (and goes back up) I have a quite big range in a day and how far away I am from GP and nearest hospital.

I would have a chat with your GP. The nebuliser gives my family peace of mind and keeps me at home when I am having my usual lows. Hope you get something sorted out that works best for you. Good luck xxx

aerotoxic_chris profile image
aerotoxic_chris

I also have a nebuliser and use saline. I swear by it! My doc tried to say that it wouldn't work but he doesn't know that I have used it for years to good effect.

nickpeters profile image
nickpeters

I'd have a chat to your GP or consultant before using the nebuliser. Normally they are used with a saline solution plus something like salbutamol to help open the air sacs. Do get advice before using the machine please.

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