I've just come back from the GP/Consultant today. I'm pretty angry to say the least-having seen the consultant previously and him saying he's not certain but is thinking I have brittle asthma, he's now saying he doesn't think i'm asthmatic, doesn't have any idea what my presentation is about or what else to do. I feel completely let down by everyone and now i'm thinking it's all in my head and i'm doubting if I've ever been unwell. What makes me more angry is I have no management for the existing medication i'm on and no real plan to move forward with this other than having repeat histamine challenge and 24hr ecg. To think i've been on oral steroids and high dose inhaled steroids for no reason makes me livid. I've had a hip problem that I think has occured because of pred. I was put on pred for 12 days because I was exhausted, dropping sats and reduced lung entry on right side as well as breathless. Saw GP again today as waking in night and no one knows what to do so I sit at home with resps 30 shattered and on ventolin 4 hourly. I'm also on highest dose of seretide too. I genuinely don't think it's anxiety and my 'asthma' flares have happened in Oct/Dec/April and seem to be weather dependant. I've been breathless with resps 30-44 dropping sats 92% raised pulse on exertion. Shattered with dropping peak flow (in winter). But because as usual no wheeze and clear chest I'm being doubted. Yes my peak flow is stable now but I honestly only think that's because i'm now taking my steriod inhaler religiously through a spacer. I just think well fine if we're saying its not asthma, lets stop all meds and see what happens! Also i've been waking at night around 3 short of breath and tight chested and no-one apart from asthma uk seems bothered. It's like i'm talking another language!
Please telll me i'm not crazy. Thinking of asking for referral to brompton but not holding my breath!