Iâ€™m really glad to have found AUK, and this board, as not knowing anyone else with breathing troubles can be quite isolating and confusing at times.
I was diagnosed with asthma as a baby, took all the usual medicines until late childhood when it seemed to get bored and go away for a bit, and am now back on Seretide 500 and Ventolin. The asthma is on top of lung damage at birth, so my best PF is around 260, although this seems to have reduced after a â€˜multiple pulmonary emboliâ€™ incident and a few chest infections to 205 on a good day. Today it was just below 160 (at only 5ft 2 this perhaps isnâ€™t as bad as it sounds!). I have three general questions if thatâ€™s ok. Iâ€™ve noticed that since starting the Seretide in December it seems to have become less effective, so while it pushed my PF to just over 200 to begin with, it has come down again despite my taking it every day since then. Ventolin helps, but not massively, and doesnâ€™t last very long. Has anyone else found that Seretide becomes less effective over time? Things seem to have been noticeably worse since the beginning of Feb.
Iâ€™ve also noticed my pulse becomes very rapid at times (>110), so for example I lie awake at night and can feel my heart beating quickly, and from time to time it feels like itâ€™s skipping a beat. My extremely vague understanding is that a PE can leave some cardiac anomaly, which has shown up on ECGs. However, a recent Echo was normal thankfully, so I guess Iâ€™m wondering if that means everything is ok and Iâ€™m imagining things. Iâ€™m not really sure how much an Echo tells you over and above an ECG, or what the ECG means, or how feeling a skipped heartbeat from time to time would tie in with any of it!
Last of all, while Iâ€™m fortunate not to suffer from asthma attacks, I do (quite frequently) feel really uncomfortable â€“ like Iâ€™m not getting enough air. My hands/feet (esp nails, fingertips) turn purple/blue, I get a bit of a headache, feel giddy, as though my vision is less clear than usual, and drowsy (around the time it happens), and canâ€™t catch my breath (so for instance, finding enough to make full sentences in conversation becomes a bit more of an effort). My chest feels constricted, and, as I said, Ventolin doesnâ€™t always take the edge off. At the beginning of Feb. I felt like I could hardly do anything and spent most of the time sitting/lying down â€“ does asthma make you really tired, so even little things leave you feeling exhausted? Fortunately these spells pass, even if they repeat themselves, and so the spaces between mean Iâ€™m able to live with it and avoid mentioning the finer details to anyone. I thought Iâ€™d tackle it here first as I donâ€™t want to cause any unnecessary fuss about nothing.