been on sub cut jst over 3 yrs now with good effects but recently especially since having to stop methotrexate in sept things not been so good and more all over place again. Just come out hosp again inclu icu admission but really not ood or picking up which is how been last few months. Feel like having to accept more and more all time and cons just says no more can do and on max treatment so seems just happy to let plod on in general state of constant crap. Feeling frustrated and fed up and wondering if my bricanyl could be incrreased again slightly to see if could help stabilise things a bit and get me down off 60mg pred and less reliant upon lots of nebs.
Anyone on pump ideas how they work out doses and what prepared t try?? My cons seems to think cant go any higher but i dont agree.
Any thoughts appreciated cos feel like hit brick wall at mo and desperate to try pick up a bit and not accept this is good as gets. Sorry for moaning