Hello All, I'm new to this site. I've joined out of concern for my Son.
He is 3 1/2 years old and has been in and out of hospital since he had bronchilitus at 3 weeks old. (unusual because he's a summmer baby so the health proffessionals tell me!)
His latest hospital stay ended up in resucistation and then intensive care for 3 days.
At present he has been on Prednisolone 35mg daily for over a month, combined with montelukast granules, Slo phyllin (slow release version of aminophylline which he has on drip form in hospital) and Seretide inhalers. Plus nebulising at home every 3 hours. The consultant put him on this meds regime but it is only meant to be this intensive for 7 days at a time when he has a cold (which nearly always trigger asthma attacks) He has been on it without a break for over a month. THe GP is very good but I would like to get further advice from the consultant who we see at the end of the month and the Gp is unwilling to see if we can get an appointment sooner. But is in contact with her via the phone. This regime is keeping him out of hospital but although he is not getting any worse he is not getting any better.
I am obviously concerned about the side affects for all this meds - some of them being obvious as he turns from my gorgeous little boy into a monster on all the drugs - he's bouncing off the walls for about an hour after his nebs which then makes him wheezy again. A viscious circle.
I was wondering if anybody has a child on a similar regime and what they feel about it. Also is there anything I can do to help the 'manic' ness which comes from the drugs?
My other worry which is a new occurance is that my son has started to panic when he gets even more wheezy than usual, which turns into coughing attacks which obviously doesn't help his asthma and I was wondering what I can do to calm him down and reassure him.
Sorry for the long message. I am exhausted as he is needing treatment through the night and day and I just want him to be well. Or at least his asthma being less brittle.
If you've got this far, thankyou for reading and I will appreciate your advice!