very concerned

[maruth]

thank you all for previous help,it been gratefully received,i am on ambulatory oxygen,. i have been waking up some mornings sob and stats down to 84.i am not sure what to do at those times,as i will run low on cylinders if i use them..any advice will be helpful.i dont have a concentrator.....i feel anxious

[elian]

hello maruth

I would suggest giving your gp/respiratory nurse a call to explain what's happened/happening. Failing that do speak to the BLF Helpline for further advice. Their number is 03000 030 555 and the lines are open 10am - 6pm Monday to Friday.

I hope you feel less anxious very soon

xx

[grannybell]

I agree with Elian. Give your respiratory nurse a call, something must be causing this.

[maruth]

the 02 nurse? been today, i am having to wait for (maybe a long time) for night time tests, there was no apparent concern. i will move on this tomoz.scarey. thank you both ,you confirmed what i was feeling. i will sit up as high as i can tonight

[johnswife]

o2 levels will below on waking up. don't worry it will make it worse. if you are running low on your tanks ring then they will come out that day but I would say call them before it gets to low. they wont mind . my husband would always be low in the moring. please don't worry tho.

[maruth in reply to johnswife]

thank you, johnswife, my anxiety level shot through the roof ,made worse by the "o2 review." an apparent lack of concern for my anxiety, only made me worse. i am also suffering with a very painful leg ulcer, which is not responding to treatment.

i am having the sleep test asap.my community matron has thankfully

intervened. i have also been referred to a cardio vascular surgeon, but your info has truly helped,,my sincere thanks to you,

i have also had 2 extra cannisters delivered today, so that will also help while i am waiting to get sorted. i told this lady i was ekeing out my supply by using a reduced level of o2,i litre instead of 2. she agreed that was ok, the BLF did not agree,....again i am thankful for the support for this forum.

i have stated i do not wish for this lady to come here again