I am thinking of doing this but a little scared. I would be interested to know if anyone has tried this and what was the outcome.
At the moment I am happy to try anything but I don't want to jeopardise my health any more. I just want to be able to breath.
I have just spoken to my husband who has had a clinical trial for prostate problems. Different field but the idea was the same. His impressions were good. He said he was looked after, personal treatment and a free lunch. His health certainly wasn't jeopardised.
Really nothing to worry about. Think it would make me feel special.
One point, ask if you can have a feedback.
All the best from Annie80.
Hi, I took part in a clinical trial for copd a few years ago for Glaxo Smith Kline at Wythenshawe Hospital where they have a dedicated medicines evaluation unit. No drugs involved, just breathing tests conducted on computerised machinery. It was a two year trial and involved, from memory, 7 visits. Some were about 4 hours, others were about 2 hours. Again, from memory, it paid about £900 so is well worth the trouble if you have the time and you are also helping research into copd which is badly needed. I must say,though, I wouldn't have taken part in any trials that involved drugs! Hope this helps! Libby x
I did a trial many years ago with drugs involved, I was much fitter then. No one knew if they had a placebo or not but I was not well after a couple of months and pulled out just before Christmas and I had a rotten Christmas I think I had the real thing not a placebo and would never do it again with drugs. Saying that I would if drugs were not involved.
polly xx
Have taken part in two drug trials. Like pollyjj, I did not know if I had the drug or a placebo.
First one was fantastic and when it was over, asked if I could have some more of that. Doc said - it could have been placebo, in which case, I replied, could I have a prescription for the placebo. It turned out to the drug and it was fantastic until I outgrew / outlunged it.
Second one was not so good, but, like all of these trials, you can stop the moment you feel uncomfortable or that you are getting worse. I reckon I had placebo and after a short while asked to come off trial as felt I was going backwards. That was not a problem to anyone and I stopped there and then. I was also monitored for a short while to make sure I got back on track.
My experience is that the health of the patient / triallist is paramount and that they would do nothing to jeopardise that. If I was asked to trial another drug, I would willingly do so and my doc knows that.
I applied this year for a trial with Quintiles in London for a new COPD drug. After a long winded process over 3 months, phone calls back and fro, I was not accepted for an assessment due my current medication. Shame, I was looking forward to it!
Do let us know if you are any more successful.
I have been involved in two trials, one was for a healing for the arteries in your heart and the second which I am still on is for Statins. On both of them I was well looked after and felt certain that my interests were paramount. Both of the trials were run by the NHS so I was not paid other than expenses.
I was nominated for both of them by my GP as I had a bypass 3 years ago. The first one I was told I had been given the drug and I have been told that the placebo and the drug are alternated every 90 tablets on the current trial for statins.
regards
David.
hi, ive been asked if i will do a drugs trial. T he letter came from my local hospital through my gp. Its for an inhaler that combines the drugs and its taken once a day. The trial is for 12 months and involves 9 visits to the hospital for 2 hours at a time. I looked up the trial on the internet and read all the things theyve done so far and i can ask for more information before i decide which i`m going to do. I can also pull out at anytime. This trial is for moderate to severe copd as im in the severe group i am considering doing it if it doesnt help me maybe it will help things in the future, its nhs so theres no fee only expenses . If youve been given a name for the trial or a number look it up and discuss it at least with your gp before deciding to go ahead. good luck
sandra
Thank you all for your responses, here is the link I was sent by a friend: quintilesclinicaltrials.co....
It's always good to hear other peoples views, I don't really get involved with group discussion but when I came across this group yesterday I read every single thread and really enjoyed it I also enjoyed the banter between everyone.
Anyway once again thank you all for the messages.
Hi I have been on two clinical trails this year - at my local hospital I was treated very well and they sent a taxi for me both ways - I did a lot of tests like breathing walking muscle weakness bloods ect - they basically gave me a good MOT although most interested in why some peoples artries may harden with copd and others don't am am due to go back in January for a full MRI Scan. I felt if was a good idea as anything that may one day benefit people with this condition was a good thing. Personally it was good as they spent a lot longer on tests than your local GP does and they then send all this information to them. Any worries discuss with your GP and Good luck BB
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