I have now had my appointment and said I would follow up. ON Tuesday I went to the Royal Brompton and had tests ie Echo, CT scon annd Lung Function test. They showed that I was a suitable candidate for the Coils trial. Apart from these tests you have to have completed a Pulmonary Rehab course. They then send your info to Americas as they are the sponsors of this trial. If they agree that you are a candidate then the trial can go ahead. Via computer generated selection 50% get the operation 50% are put in a controlled group. If you are in the controlled group then you have to attend the clinics for a year and after that you can have to coils operation too.
Hope that info helps Davey1192
Written by
eepee8
To view profiles and participate in discussions please or .
I went to RB supposedly for tests for suitability for Stents but got tested for LVRS - that was in 2008 some time back. I really didn't want the LVRS although I saw a patient who had just had part of their right upper lung lobe removed - just a thin scar under the breast and two "holes" for instruments under the right arm - very neat job indeed. No sternum cutting.
I mentioned to my Consultant about Endobronchial Valves and, at the end of 2009, he said I was a "very suitable candidate for for Valves". To cut along story short my name was on his list but he retired in 2010/2011 so nothing happened. I see their new Consultant next month and hope that things haven't been left too late for me.
Thanks for comments jemma. I was not suitable for LVRS as my breathing stats would not cope with major surgery. I wish you well for your appointment next month. Who knows our paths might cross.
Hi Ratatouille, no I didn't have the op after the initial tests as I failed the CT scan as it showed I had Bullae in the bottom right lung. In September 2013 the Royal Brompton contacted me again because the criteria I had failed on had changed but I would have to re-do the tests. This time I failed on the lung function test. If only I had got accepted the first time around. Very disappointed to say the least. Thanks for asking. Are you being considered for an op like this?
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.