Lung Volume Reduction Coils - Lung Conditions C...

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Lung Volume Reduction Coils

12 years ago•9 Replies

I have now had my appointment and said I would follow up. ON Tuesday I went to the Royal Brompton and had tests ie Echo, CT scon annd Lung Function test. They showed that I was a suitable candidate for the Coils trial. Apart from these tests you have to have completed a Pulmonary Rehab course. They then send your info to Americas as they are the sponsors of this trial. If they agree that you are a candidate then the trial can go ahead. Via computer generated selection 50% get the operation 50% are put in a controlled group. If you are in the controlled group then you have to attend the clinics for a year and after that you can have to coils operation too.

Hope that info helps Davey1192

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eepee8

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12 years ago

Thanks for the info. Very interesting. I wish you luck.

eepee812 years ago

Thank you. I will post with up-dates as they happen.

Jemma12 years ago

Hi Eepee

I had tests at the RB a few years back and they are excellent. Here's a link to the LVRCoils manufacturer - hope it helps:

pneumrx.com/technology.aspx

eepee812 years ago

Thanks Jemma. Did you have any procedures done?

Jemma12 years ago

Hi Eepee

I went to RB supposedly for tests for suitability for Stents but got tested for LVRS - that was in 2008 some time back. I really didn't want the LVRS although I saw a patient who had just had part of their right upper lung lobe removed - just a thin scar under the breast and two "holes" for instruments under the right arm - very neat job indeed. No sternum cutting.

I mentioned to my Consultant about Endobronchial Valves and, at the end of 2009, he said I was a "very suitable candidate for for Valves". To cut along story short my name was on his list but he retired in 2010/2011 so nothing happened. I see their new Consultant next month and hope that things haven't been left too late for me.

Yes, I have seen Davy's posts - very interesting.

eepee812 years ago

Thanks for comments jemma. I was not suitable for LVRS as my breathing stats would not cope with major surgery. I wish you well for your appointment next month. Who knows our paths might cross.

Ratatouille11 years ago

did you ever have the op?

eepee8• in reply toRatatouille11 years ago

Hi Ratatouille, no I didn't have the op after the initial tests as I failed the CT scan as it showed I had Bullae in the bottom right lung. In September 2013 the Royal Brompton contacted me again because the criteria I had failed on had changed but I would have to re-do the tests. This time I failed on the lung function test. If only I had got accepted the first time around. Very disappointed to say the least. Thanks for asking. Are you being considered for an op like this?