Why no respiratory SCN ?????????

[chiggles]

What is going on when respiratory is left out of NHS funding and the Breathe Easy need to start a campaign that will put us back where we should be. Trying to be the best not worst place for COPD care in Europe.

[Hidden]

Erm what is an scn and why would we want it is not clear but they have shortened so much it used to be Emphysema not any more they have shortened it into a name no one has heard of to use jargon when calling something by it's right name is simpler.

[amster in reply to Hidden]

Strategic Clinical Networks - organize improvements in care for respiratory care if we get one otherwise things go down the pipe as more are found having Emphysema.

[Hidden]

Its all being sorted

with the key individuals, no need to advertise this oversight through your local media and press, it will be best dealt with by the professionals below representing us

quote

BLFCommsTeam BLF

3 days ago

Report

Thanks for getting involved – it’s great that you are all sending letters to your MP. In terms of contacting the media, as we are currently in discussions with the Department of Health and key individuals within the NHS about this, and as we need to give our MPs a little time to react to our letters, it might be best to not going to the press just yet. Hopefully, we can achieve the right outcome for respiratory disease patients by talking rationally with the key people and by asking our MPs for support. If we don't see an adequate response in due course, however, we will definitely be in contact with all Breathe Easy groups to discuss with you all what further possible action we can take. Thanks!

[chintz1]

Write letters now or when the Braethe Easy ask is not clear what is asked for or when it should happen can you e mail an MP or will security stop you.

[potznpans]

Because we are not worth it ?