IPF Week

[tanyamarie]

Had a message today from someone at the BLF about doing an article about IPF to be published on IPF Week. Will have a chat to dad to see if he interested but I am more than happy to participate in anything that helps to raise awareness of such a terrible disease. Shall keep you posted.

[anniediv]

Please persuade him, my dad has it too.

[tanyamarie in reply to anniediv]

I will see him tomorrow. How is your dad and how are you?

[brujapatsy]

my brother is struggling with this terrible disease

I never heard of it untill he was diagnosed at the start of this year

[tanyamarie in reply to brujapatsy]

same as me brujapatsy

[BevWears]

Thank you for any support you can give to help the BLF raise awareness. I know this may be difficult for a lot of people to get to but we still have a few places left for our IPF meeting in Leeds on the afternoon of 26 September. If you can't make the meeting but would like copies of the presentations, please let me know - [e-mail] - or send a large SAE marked 'IPF' to: British Lung Foundation, Sir G B Hunter Memorial Hospital, The Green, Wallsend, North Tyneside NE28 7PB. If anyone else is willing to tell their story, I can pass your contact details onto our communications team.

Thanks for your help - Bev (BLF North Region)

[HEAVYBREATHER in reply to BevWears]

Bev,

if you could send me electronic copies of the presentations I can add them to the pulmonaryfibrosis yahoo group(pulmonaryfibrosis@yahoogrou... so that all of our members can download them if they are interested.

[tanyamarie in reply to BevWears]

Bev,

Id love to go to it, trouble is I work Wednesdays and have to ask for it off, but by the time I send the request form off for a space it would prob be too late to organise.

[Hidden]

Hi Tanyamarie,

I think you're the right person for the job.

you always seem to come across as very knowledgeable about COPD, I just hope your Dad agrees.

Good luck & take care

Dave xxx

[tanyamarie in reply to Hidden]

Thanks Dave, I am so passionate about fighting these blinking awful illnessess I wind myself up about it that I just simply don't have the time to do much.

You take care too xx

[brujapatsy]

I live in spain ,my brother is in london.

I would attend if i could .

Public awareness is certainly needed

[BLFCommsTeam]

Hi all,

If anyone would like to share their story about being affected by IPF (if you have it yourself or know someone who does) please get in touch with the BLF press team on [e-mail]. Sharing your story if a great way to raise awareness of the condition.

We look forward to hearing from you!

[tanyamarie in reply to BLFCommsTeam]

Hello,

Matthew from the Welsh Team called today and I had a phone 'interview' with him so hopefully there will be an article published next week. Fingers crossed. Like I said to Matthew, I am more than happy to take part in anything to help raise awareness of IPF so please feel free to pass that on.