IPF news

[Suzie42]

I had a notification from Pulmonary Fibrosis News with a new treatment for IPF, here is the link

pulmonaryfibrosisnews.com/2...

[Snowdrops_17]

Interesting Suzie! But I have to sort my tea out know as got early start at work tomorrow! Will have more time tomorrow late afternoon to read more about this! Hope you have a wonderful 3rd Advent my friend 🙏💕

[skischool]

Thank you Suzie.always interesting to know about new treatments for IPF as there are so few meds at the moment that arrest the progression of this condition.Best wishes Ski's and Scruff's x

[Suzie42 in reply to skischool]

Thanks ski's, I'm forever hopeful of a better med than what I'm taking with such awful side effects. Take care x

[Beachballs]

Hi Susie , thanks for sharing , very interesting and I agree an alternative to the current drug would be most welcome , although I am very thankful that I am able to tolerate this one, and just wish I could have been given it sooner.

Take care and keep well. X

[Suzie42 in reply to Beachballs]

I'm not getting on too well with it, I keep having to have breaks from it to settle my tummy, but i am very grateful to have it, just dont want the side effects . Take care and looking forward to vaccine x

[Beachballs in reply to Suzie42]

Ahh I know what you mean , I know it sounds silly but if you can stay upright and not bend over for 2 hours after taking it , that helps.Also , I take an anti sickness tablet at the same time and find that helpful.

You would have to get advice on that as we are all different and I have no medical knowledge.

Yes !!!! Looking forward to the Vaccine, so close now !!!

Take care. X

[Suzie42 in reply to Beachballs]

Thanks for that advise, will have to give it a go. I take anti sickness when I've had egg for breakfast otherwise dont often take that. I'm on 4 loperamide daily. Its breakfast I find the hardest. Take care xx

[Beachballs in reply to Suzie42]

Breakfast is not too bad for me now that I have increased my food intake to accommodate the drug .

Good luck and hopefully things will improve for you, x

[Suzie42 in reply to Beachballs]

I meant to put 3 not 4

[Suzie42 in reply to Suzie42]

I find it too early to eat as I like my evening meal around 6. Can I ask what sort of breakfast you eat x

[skischool]

Sorry but i felt the need to report your advice to the moderators of this site.i don't believe it is in the interest of any members for you to advertise the products and services of a certain Dr Rath in South Africa,who i believe runs this organisation for his snake oil approach to the treatment of people with life threatening conditions.Certain herbs and supplements may be beneficial for sufferers with lung conditions but they are in no way a recognised cure for them.

Enough said.

[Hidden in reply to skischool]

Skis, I’ve reported the profile as a spam account for sales and marketing purposes in breach of guidelines. The profile is word for word the same as all 6 of the replies posted by the account in the last 5 hours, the only variation on any of them is the amount of contact details provided for the ‘company’. Most of them go on to say that they ‘guarantee’ to cure all of these diseases. Fricking charlatan wastes of space.

[Caspiana]

I know your source. Your "company" is a fraud promising 99% results for diseases like emphysema. You are mistaken if you take us for fools. Oh and this picture is straight off of Facebook. Just a slight adjustment in the name. Good grief.

multivitamincare.org/

[Suzie42 in reply to Caspiana]

I'm at a loss reading what has come before. I only posted about a potential new treatment being trialled. That was a couple of months ago. Does this sort of thing happen often. I dont think I will be posting anything if it does

[Caspiana in reply to Suzie42]

No Suzie. Your post is not in question. It is the person I responded to that is selling "cures" for incurable diseases. Please keep posting your links from credible sources. It makes sense that these spammers target health related sites as there are many sick and vulnerable people here. Don't let it bother you at all. xx 😀😃😄😁

[Suzie42 in reply to Caspiana]

Thank you, it's a bit worrying when people just tag on xx

[Caspiana in reply to Suzie42]

Yes, it is. But don't let it unnerve you. There will always be these kinds about. 🌼🌺🌸🌷

[Hidden in reply to Suzie42]

As caspiana says, there will always be people like this. Thankfully, we really don’t get many at all here, so please don’t let it put you off - IPF isn’t my neck of the condition woods, but I read around all respiratory issues and treatment developments generally, and your link was an excellent contribution. Skis has reported the replies, and I’ve actually reported the profile: with any luck, it’ll be removed before you know and we can all just carry on like they never existed.

[Suzie42 in reply to Hidden]

Thank you and I am feeling better about it all now. Thanks again

[Suzie42 in reply to Hidden]

It has been taken off, thank you to you and Skis, not before the person emailed me 6 times and asked me to personally contact him on last email.. ive deleted them all.