IPF Week - 23-29 September BLF Leading the Fight Against IPF

[BevWears]

Do you or someone you know have IPF (idiopathic pulmonary fibrosis)? You may like to add a date to your diary for a meeting on IPF being organised by the BLF North Region in Leeds on 26 September, 12.30-4.30pm, during World IPF Week. This meeting will be chaired by North Regional Committee Chairman, Professor David Fishwick and the programme will include experts in IPF, information on research and support available through the BLF.

The day is aimed at people who have, or care for someone with, IPF and there will also be a limited number of places available for healthcare professionals wanting to learn more about the disease.

If you would like to receive further information about the event, please email me on [e-mail].

[Posative]

hi i have been diagnosed with IPF as i live in birmingham it would be difficult to get to Leeds for meeting on 26th sep would i be able to get a copy of the contents of meeting from anywere as i would be very interested in reading it .

regards julia.

[BevWears in reply to Posative]

Hi Julia

Yes, we're planning on making the presentations available and I'll inform people on this blog. If you'd like to receive email notification of this, please drop me an email at [e-mail] so I have your contact details. With best wishes, Bev

[Posative in reply to BevWears]

hi bev my e-mail address is [e-mail] for info on the presentation on IPf on 26th sep

regards julia

[BevWears in reply to Posative]

Thanks - I'll be in touch. Bev

[threeputt]

I would like details and would hope to attend. I am an IPF sufferer

[threeputt]

forget that just realised I am 2 years late

[BevWears in reply to threeputt]

Hi Threeputt. Sorry you missed this one. We've been holding a series of IPF Meet the Experts events and as a result have started a support group in Newcastle. Not sure where you live but if you'd like more info, please email me on [e-mail] With best wishes.

[threeputt in reply to BevWears]

Hallo Bevwears,

Looks like I should pay more attention to when messages are posted. I live in Staffordshire so depending on where meetings are I may be able to make. If you could let me know when and where, I would be grateful

[BevWears in reply to threeputt]

Meetings are held in Gosforth, Newcastle upon Tyne so maybe not convenient for you. The BLF Helpline has all the details. They will also have details of any other IPF support groups nearer to you . . . I think there's one in the Midlands. Helpline can be contacted on [e-mail] or 03000 030 555. with best wishes, Bev

[threeputt]

Thanks for that I will contact them and get info.

Regards