EDAC 80%: I would be most grateful for... - Lung Conditions C...

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EDAC 80%

Jellybaby66 profile image
10 Replies

I would be most grateful for any help with EDAC my airways collapse to 80% any suggestions on managing would be fab 😊

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Jellybaby66 profile image
Jellybaby66
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10 Replies
AsthmaandLung profile image
AsthmaandLungAdministrator

Hi Jellybaby66,

If you're in the UK, please give our helpline a call on 0300 222 5800 (Option 3) Monday to Friday 9am-5pm to have a chat with one of our clinical team who may be able to advise you.

Best wishes,

Helpline Team

Patk1 profile image
Patk1

I've severe EDAC × severe TBM both greater than 90% collapse on normal breathing.read up on controlled pursed lips breathing technique on aluk website.its important to remain calm to maintain airflow.id practise the technique frequently so u can be familiar with it when needed.it can take time but does work.id ask to see a respiratory physio for tips too

Jellybaby66 profile image
Jellybaby66 in reply toPatk1

Thanks for that, i must say keeping calm is key , stay well

janedivney profile image
janedivney

The Brompton gave me a Cpap machine. For reasons not yet really understood, it helps enormously and the effect lasts into the daytime

Jellybaby66 profile image
Jellybaby66 in reply tojanedivney

Ah ok, going to the Brompton in Jan to discuss diagnosis , great to hear cpap is helping 😊

hi. I have recently been told I have EDAC. Very worried, but I was treated for Asthma and nothing helped. I’m now under the Royal Brompton Hospital in London.

I am in my local hospital right now. Treated fir flu and RSV blood clot on lung.

Hopefully thus forum will get me to a safe confident place.

Jellybaby66 profile image
Jellybaby66 in reply to

Im off to see team at Brompton in Jan to discuss my diagnosis, really feel for you , it’s so scary but we are in great hands , keep warm , keep smiling ☺️

thank you for showing concern. Let’s keep positive throughout.

Jellybaby66 profile image
Jellybaby66 in reply to

Absolutely, merry Christmas 🤶

martin_1972 profile image
martin_1972

I have just come out of the Brompton today after a Broncoscopy on Monday and the main thin that has come out of it is the diagnosis of EDAC

Excessive dynamic airway collapse assessment

Rest/Forced expiration/cough

Trachea 50 / 70 / 70

Left main bronchus 20 / 40 / 40

Left lower lobe 70 / 100 / 100

Right main bronchus 50 / 70 / 70

Bronchus intermedius 20 / 50              / 50

I am already a severe astmatic with sleep aponea so been on CPAP for 10 years.

I am on already on all the asthma medications including nebs, hypotonic saline, Fluticasone, Spiviva, Prednisolone and Tezepleumab biological treatment)

So next steps for me are apparently More pulmonary physio to try and help strengthen the airways. luckily not quiet at the point of stents yet but now this part has been diagnosed they can keep an eye on things

But it does make the increased breathlessness i have been getting on excretion.

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