EDAC

[scobbie1]

Hi everyone just came back from appointment at the hospital the respiratory doctor told me I had EDAC has anyone heard of this or have any information

Thank you in advance

[sassy59]

Excessive dynamic airways collapse scobbie. Someone else on HU has that so may see your post. I would speak to your respiratory doctor again if you can. Xxxx

[scobbie1 in reply to sassy59]

Thank you sassy59

[Nottobad]

What is it don't know what EDAC stand for

[scobbie1 in reply to Nottobad]

Excessive dynamic airways collapse

[Sued1958]

Hi I too have been diagnosed with this 'rare' disease. The only treatment my respiratory consultant has offered is a trial of CPAP. The consultant says that this is not a recognised treatment within the NHS but he has seen positive results in his patients

[scobbie1]

Thank you for your reply sued1958

My consultant has prescribed spiriva, a pari o-pep device, and breathing exercises from physio and I go back to sea him in three months do you know much about this disease as all I know is on breathing out my tubes claps he said there is nothing they can do but keep an eye on me ( so reassuring )

[Quinny11]

I was diagnosed with Edac in January,I too have breathing exercises I'm still trying to get "right".

I've also been told to get a cpap machine which seems to help at night but not really during the day.

I've been told losing weight will help as I'm overweight.

My closures is 80 percent

[Annieosb in reply to Quinny11]

Hi, I too have just been diagnosed with this. Could this account for back pain and general tiredness?

Thanks

Annie

[Dcattell]

I have just started the test. They also recommend CPAP but said to use it during the day when watching the television or quiet times. Edited by moderator.