New treatment for COPD

[Coughingalltheway]

I've just come across this article as a new way of treating COPD. An hour long operation, seems like a miricle to me!

rbht.nhs.uk/first-uk-patien...

[sassy59]

That sounds amazing and a huge step forward. Thank you for posting. Xx

[Patk1]

Sounds amazing x

[Welshcatlady]

Sounds really good, thank you for sharing. xx

[leo60]

Thank you so much for posting this! My (St. Thomas' hospital) specialist is going to refer me to the Brompton for LVR, maybe this could be an alternative? I will look into it!

Thanks again, Laurie xx

[Coughingalltheway in reply to leo60]

Good luck! xx

[leo60 in reply to Coughingalltheway]

Thank you 😘 xx

[Yoga2011]

I saw this a few months ago and could be good news for sufferers. They are doing lots of different trials but I don’t know how old the info link is.

[Coughingalltheway in reply to Yoga2011]

They are doing it privately at Guys Hospital but I can't find any information on whether the NHS are carrying on with the trials.

guysandstthomasspecialistca...

[peege]

Wondering if it could help other lung diseases or just copd 🤔. Royal Brompton is a highly regarded Respiratory hospital in London (in case you weren't aware). Thanks for posting 👍

[bikergrove]

Sounds wonderful, thanks for sharing.

[Linsforbes]

I think this is an old post as I found it a few years ago. Haven’t heard anything since.

[Thepainterswife]

Wow ! Good news indeed , hopefully a treatment will be available to all Copd sufferers in the near future

[Bingo88 in reply to Thepainterswife]

Good morning. Hope your keeping as well as possible. Brian

[Thepainterswife in reply to Bingo88]

I am Brian , so far so good thanks 😃 I’m just off to the garden centre. How are you ? xx

[Bingo88 in reply to Thepainterswife]

Yes I am doing ok Thanks. Just plodding along. Like us all. Enjoy your day and weekend. Brian

[garshe]

Thank you for sharing. I have written to them enquiring about treatments or trials for Severe COPD I will let you all know IF I get a reply. 🤞🙏xx.Sheila

[Dumba in reply to garshe]

Trying too

[garshe in reply to Dumba]

Good luck xx.Sheila 👍

[Dumba in reply to garshe]

This was 2016

[garshe in reply to Dumba]

OK thanks xx.Sheila

[Superfly1975]

I contacted the Royal Brompton about this procedure a few months back, I was told that currently it is only available privately at a cost of around £10,000.

[Coughingalltheway in reply to Superfly1975]

I know that Guys Hospital are doing it privately, it would be interesting to know why the NHS isn't. I'll try to go through the various NICE reports to see if I can find anything.

I'm annoyed that it's still at the top of the search page on Google if it's old news!

[Superfly1975 in reply to Coughingalltheway]

I think it was March time that I first saw it, Brought it to the attention of my GP practice and the Respiratory Nurse who had no knowledge of the procedure.

[garibaldon]

I read a few years ago it was a treatment only for chronic asthma suffers and was developed in the USA.

[Lee_Scoresby]

Thanks for this encouraging news link. Isn’t it nice for us to have a little ray of positive news amongst all our problems?

[Dumba]

Amazing news, hope for many thanks. Hope for me !

[Coughingalltheway]

I am so sorry guys, I am new to all this and I naively thought that this was current. Several comments below have said that it's old news so I've looked further and found out that NICE doesn't recommend the procedure yet as there have not been enough trials done. See below:

Again, sorry to get people's hopes up (including mine!)

1 Recommendations

1.1 Evidence on the safety and efficacy of endobronchial nerve ablation for chronic obstructive pulmonary disease (COPD) is inadequate in quantity. Therefore, this procedure should only be used in the context of research. Find out what only in research means on the NICE interventional procedures guidance page.

1.2 Further research should be randomised controlled trials comparing the procedure with sham treatment. It should report details of patient selection, and short and long-term functional outcomes including lung functional outcomes, quality of life and patient-reported outcomes, incidence of exacerbations and hospital admissions, and all adverse events.

[Swizzy]

There are always things which raise our hopes. Unfortunately they are not always what they seem or are re runs of procedures tried years ago. When I was teenager in the 60s there were always prayers said in church for a young lady who was bedridden and on a ventilator. She later died. I discovered years later that she had undergone a procedure to her vegus nerve for her asthma and this is how she ended up. My sister had an operation to shred the vegus nerve in her gastro system because of really awful ibs. They have now discontinued it on NHS deeming it not to be safe.Sorry guys - oh how we all wish, whatever our condition but 73 years of bronch have left me very sceptical.

[Coughingalltheway in reply to Swizzy]

Wise words, thank you Swizzy. I guess that we'd all jump at the chance of getting better but as you say, lots of false hopes.. x

[katieoxo60]

Sounds marvellous especially for people with bad COPD . The treatment of the future hopefully . Thanks for link.x