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Radiotherapy treatment

Paulo1976 profile image
21 Replies

Hey everyone, it's me again. Thanks to all so for for reading and for those who have offered advice. It is very helpful. I am writing on behalf of my mum, who as SCLC on right lung. She has undergone 3 chemo sessions, which have considerably shrunk the tumour. They have now offered radiotherapy, which I hope she consents too but respect 100% it's her decision.

They have offered three options.

1) 20 sessions, ( 4 weeks). Side effects etc. 1-5 the tumour disappears. Side effects last longer and doubles prognosis.

2) 10 sessions ( 2 weeks). Side effects not as harsh and life expectancy not as long

3) 5 sessions (1 week ) as above.

I understand the side effects are not as harsh as chemo but they are different for everyone. I live a distance away from my mum and looking at moving her near to me in the coming months.

My question is, what is recovery time like after radiotherapy? Am I being to optimistic to move her? What shall I expect? I am hoping to move her in the autumn. I just want her to be near me....

I hear most people don't really have any side effects. Be good to hear from people who have had any of the options and how they felt afterwards.

Thank you again for your support

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Paulo1976
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21 Replies
sassy59 profile image
sassy59

Hi Paulo, your mum may well do better being near to you if that’s what she’d like to do. I had radiotherapy last year for five weeks after a full hysterectomy because of endometrial cancer. I found it to be absolutely fine with maybe just a few side effects but nothing terrible. As you say though, it’s different for everyone.

The side effects can go on for a long time but radiotherapy could give your mum a longer life and better outcome. I hope she makes the best decision for her and l send my good wishes to her and you too. Xxx

Paulo1976 profile image
Paulo1976 in reply to sassy59

Thank you Sassy59. xx

armstrong2 profile image
armstrong2 in reply to Paulo1976

hi paulo l had 20 sessions of radio in 2011 for breast cancer ..side affects for me quite exhausted through travelling daily and like a burning sensation on my chest ..because of the radio rays other than that l am still here to tell you this story ..l wish your mother well and you too x

Welshcatlady profile image
Welshcatlady in reply to sassy59

Can't answer on the Radiotherapy, but wish your mum all the best and hopefully whichever option she decides to take works for her.

Issy22 profile image
Issy22

Hi Paulo Iam sorry I can’t comment on radiotherapy but I wish your mother all the best and I hope she gets the treatment she needs. 🩷

Issy x

djbctla profile image
djbctla in reply to Issy22

I like to add my best wishes with Issy.

BERNARDINE

Badbessie profile image
Badbessie

My mother had twenty doses over four weeks . However this was for cancer within her inner ear. Apart from feeling tired my mother stated there were very few side effects. The main problem was actually getting her everyday to the radiotherapy. We enquired about hospital transport but found she would spend nearly all day at the hospital. Luckily we have a large family and two of us would take her down. One to take her in to therapy whilst the other tried to find parking which was a nightmare. My mother who was 90 at the time found it very tiring but she said most of that was due to travel. My mother is still with us at 97. I do hope your mother as a similar outcome.

Difficul profile image
Difficul

I, too, found the travelling very tiring because I had to go to a hospital 30 miles away for five weeks Monday-Friday. I got a blister right at the end which became infected. I don't know if it was the radio therapy, the travelling or the antibiotics but my haemoglobin became too low which affected my breathing. I also lost a stone in weight over the 5 weeks but did find it hard to eat due to the travelling. Too early before we went out and too tired afterwards. However, the radio therapy and subsequent operation does seem to have dealt with my cancer as it's now over 4 years. It was not lung related.

I can't personally see any point in your mother only doing half the job and I wouldn't worry about the autumn at this stage.

Hopeful1 profile image
Hopeful1

I just wonder, with no knowledge on the subject. Is each session the same? Can you say yes to the longer course but stop early if side effects too much? Or might that be unethical and deprive others of longer choices? Just wondering from a position of total ignorance.Best wishes to you both in your Mum's difficult decision.

Paulo1976 profile image
Paulo1976 in reply to Hopeful1

Hi Hopeful1,

I asked the very same question. It is one option or nothing....you cant take 5 sessions and then think Oh, I will have the 20 now.....they were very clear on that. Each session is the same. The hospital said each session is 20 mins long.

Hopeful1 profile image
Hopeful1 in reply to Paulo1976

Did you ask the other way round? Sign up for 20 but stop early if found too hard?

peege profile image
peege

Can I add my best wishes for your mother, and you too. I cant add any advice but would be considering completing the treatment before a move because of transferring from her established medics to new ones in another area for continuity. Very best wishes. P

Bevvy profile image
Bevvy

I hope your mum does well with what ever decision she makes. One thing I note - you are hoping to move her nearer to you. Is that what SHE wants? It can be difficult as a child of an unwell parent and we can act impulsively. Will she lose her support network (ie friends neighbours and so on) by moving to you? If you are at work all day she may have less company than now….

I just think it’s something to be careful of. Also if she moves whilst having treatment how will that practically work? Can she still attend her hospital or will treatment have to move? That can be difficult if she needs to move treatment, especially if she has built a good relationship with current medical staff.

It’s all difficult and a situation faced by many people. We want to do the best for our loved ones but ultimately whose to say OUR best, is the best for the parent!

I wish you both well and let us know how she gets on.

Paulo1976 profile image
Paulo1976 in reply to Bevvy

Thank you Bevvy.

It is what she wants. The support network is much greater near me and we can be relied upon.

The move will happen after the treatment has ended. That has always been my plan. Radiotherapy will double her prognosis. Ultimately, its up to my mum.

Take care

x

TObby75 profile image
TObby75 in reply to Paulo1976

I had chemo & radiotheraphy started both at the same time couldn't finish chemo bit did full course 20 sessions for lung cancer 2 yrs ago saw oncology consultant 4 days ago & told I am still in remission only side effects I had were tiredness from radiotherapy I am 78 next week !

Paulo1976 profile image
Paulo1976 in reply to TObby75

Fantastic...! Thank you Tobby75. 💪🏻💪🏻

Izb1 profile image
Izb1

I wish with you and your Mum all the very best and hope for a good outcome x

Patk1 profile image
Patk1

Wishing u and Yr mum well x

Alberta56 profile image
Alberta56

Just to send best wishes to your mum and to you.

katieoxo60 profile image
katieoxo60

HelloPaulo1976, the choice for your mums treatment is hers after considering all. But in general its what the Dr thinks might control your mums cancer. I have similar to your mum but have been offered radiotheraphy only one of the newer type s which allows fewer treatment sessions possibly because I have a cancer history or other health history that might impede success. We are all different best wishes to you both x

Nula2 profile image
Nula2

Hi Paulo, can't offer any advice but just wanted to add my good wishes for you and your mum with whatever she decides to do 🤞😊xxx

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