I am touch with someone who is currently working towards her PhD, looking at patients and NHS services who are using mindfulness, yoga, tai chi etc to help manage their severe breathlessness.
Have a big favour to ask you and it would really help to know if these types of help have been available for any of us.
Have these types of health options been offered to you by your clinical supports teams ?
Just a yes or no answer will be a big help to begin with. Pretty sure they are not offered as routine therapy, although I could be wrong ?
Thanks again.
Pauline
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PaulineHM
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I belonged to the arrythmia forum on HU and took part in Thai chi for a twelve week course earlier this year. It was very beneficial and I enjoyed it. X
I have tried pilates and yoga and really enjoyed them as a change from swimming!
This Saturday coming I won't be going swimming even if I wanted to as they are closed due to an event there!
How are you getting on and how is Pepparuby the panther and Hector and the kitties?
Baby is great and has driven us mad with her meows about the heat and sends her best wishes to the kitties!
The flat is great and it's good news as I have paid for the furniture in full now so that's one less thing to get worried over!
When I first moved I was absolutely terrified of the costs but decided to go step by step with the things which has helped.
The old place like I had suspected has been turned into an air b and b place and I wasn't surprised when I found out!
To be fair I do feel they did me a favour when they evicted me but it was a horrible process to have gone through though with having to go to court and getting the eviction warrant hand delivered to the place and thankfully I was out when that happened but still it was a shock coming home that evening and receiving that saying they were coming to evict at the end of May even though I had been expecting it for ages!
Now I look back and I'm thankful that I didn't have to stay in a place where I was no longer welcome at for months and months on end waiting for the bailiffs letter saying when they are coming to evict but still it wasn't very nice having to have waited 6 weeks though but I got through it and survived it and now feel getting evicted was the best thing that could have happened to me!
Sometimes things happen for a reason but at the time we don’t see it. I’m so glad you’re settled and Baby is ok. All 4 kitties here doing well Hector had his 16th birthday and pepparuby still hides lol
At the pharmacy where I used to work one of the technicians has a pedigree cat who had a 16th birthday party and she was showing us all photos of the party and a sign on the cake saying 16!
Another of the technicians who just got promoted to being a senior technician has an extremely spoilt beagle who got given a birthday party as well and I bet if my father was still around he would have called the technician a fake looking bimbo as she has dyed blonde hair and a fake tan not good enough for me to be friends with but as soon as he would hear she had been promoted his attitude would change as he was a bully and a snob!
I bet if he was still around I would have been shouted at for moving up here and for not having consulted them only telling them I had moved when it was done and nothing could be done about it as I did do!
Point is I don't have to tell anyone anything if I don't want to!
One of the other staff who should know better had said that the technician was pretty and I said how I thought she has a great personality which is more important in my view!
My friends reckon that life had waited for my father to be out of the way before returning me to a community where I belong as they feel that the inner city wasn't a place for me but living just outside the cities is!
This community reminds me of the community I grew up in which my father hated as he had felt the place wasn't good enough for the family so had moved us to a snobby community when I was 11 which I had hated and I was always angry over that and how it was done and the way I was treated as well!
Where I live now is equidistant to both Cardiff and Newport and paradoxically travelling to places is a lot easier here and expenses are lower as well so what's the problem?
Saturday just gone I enjoyed an event in Cardiff Bay which was the 999 emergency services open day where the emergency services were there and did some demos which I really enjoyed watching and it was nice to be out and about!
Many happy returns to Hector on his 16th birthday!
Did TaiChi for 6 years and found it really beneficial on a number of levels. Sadly classes closed during Covid and have not reopened due to leaders standing down. Really miss it - have severe COPD, asthma and osteoporosis. Never been offered anything other than PR which was helpful but again, not currently available.
Hi Pauline. I have never been offered any of the courses you describe. However, I have done a couple of Mindfulness courses for depression. I would really like to do some yoga or tai chi customised for lung conditions. (I attended an NHS pulmonary rehabilitation course that was a disappointment, despite the excellent physios who facilitated it.) I would be very grateful if you could tell me where these courses are available. Best wishes
Thanks Swimmer for responding. I am so pleased that you have been able to attend a couple of courses for depression. I really hope they have helped to lift your mood ?
Sorry to read that you found the PR course disappointing.
The courses I have been asking about are not as far as I know available for Respiratory patients except on the My mHealth app which is only available via NHS Respiratory teams. My colleague who is trying to research the availability of these therapies which is why I asked for everyone's help. There are plenty of courses in the community though, that what I access to help my own health.
I am in US and have been doing chair yoga or seated yoga, tremendous help for breathing and flexibility, I am 77 years old and have found both beneficial. Not offered to me by healthcare, found on U Tube or Free TV.
I attended a Coronary Rehab course after a heart attack. The nurses urged us to keep on exercising after the course and pointed us strongly towards a class called Gentle Touch at the local leisure centre (circuit training ,but not too vigorous). I was still doing it before and after Pulmonary Rehab and felt quite fit. Then Covid struck. Post Covid I dared not go back to the leisure centre, which shared the building and some of the facilities with a comprehensive school. I started Pilates, which helps, and now do Chair Pilates once a week and a balance class. I have paid for all these classes myself.
I have COPD & have never been offered this, took me kicking up a fuss because of lack of care to get offered Pulmonery Rehab, that was 10 years after diagnosis, (could be longer than that) so don’t think I ever will either 😊💐🌹xx
I use yoga and Pilates connection to breath for 10 years… I was paying for private lessons with a local company… who had to let me go this year because my breathing and having difficulties on some days in participating was disturbing the other ladies during the meditation … however I have found another lady who is more proactive to people with breathing and heart concerns plus is a first aider…. So the question answer is Yes, but privately But I think it must be outlined in the survey that some yoga teachers (3 in my experience) do not appreciate anyone with heart or lung difficulties in their classes, due to the difficulties of learning connecting to breath and also it’s not good advertising for them when a student still has concerns with breathing.
No, only Pulmonary Rehab, after I asked for it, and the local Breathe Easy Group. That recommends my singing for lung health group, but the NHS doesn't because people are asked to pay £1 per session.
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