UPDATE

[Numptybrain]

hi everyone

I’m so pleased I found this site and you all have been so helpful. I’m still currently in hospital, had plenty of IV antibiotics are carbosteine through IV fluid on lungs and heart is still there but thankfully it’s not congestive heart disease, it’s what they believe a connection tissue disease so it’s a referral to a rheumatologist. I’m now on oral antibiotics and carbosteine so I’m really hoping I can go home now and just wait for this appointment which probably will be a while, in the meantime here’s hoping we all stay infection free . Thanks everyone.

[peege]

You're so welcome, we do our best 🤪

glad things are improving and dont forget to let us know how you get on with rheumatologist ××

[sassy59]

Hoping things improve for you now and you get to go home. Xxx😘👍

[Germantara]

I wish you well with speedy recovery

[Donald_1931]

I hope you are soon back home and feeling more comfortable. xx

[Alberta56]

I hope you hear from the rheumatologist before too long. Glad there is some progress in nailing down the cause of your troubles. Best wishes. xxx

[Numptybrain in reply to Alberta56]

I was in hospital due to fluid on the lungs and heart also a lung infection as I have bronchiastasis but after more tests, scans etc the cause wasn’t congestive heart failure

[Ern007 in reply to Numptybrain]

Good for you, CHF is not good news. I have had fluid on lungs. Was given water tablets and Oxytet.

[Numptybrain in reply to Ern007]

Hi, the diuretics didn’t shift it and they only managed a sample so drainage was a no no, so it’s now for the rheumatologist to treat the underlying cause and get rid of the fluid that way.

[Ern007 in reply to Numptybrain]

Out of my depth here - I have never needed a "rheumatologist" - Diuretics and Oxytet worked for me but the cause was Cardio/respiratory. I wish you weii.

[Numptybrain in reply to Ern007]

Hi

Yes because although I was admitted with plural effusion and infection, after fluid was tested it wasn’t congestive heart failure causing fluid around lungs and heart so they are in agreement it has to be a connection tissue disease.

[Ern007]

Hope you get home soon, Not good as a hospital resident. let us know how you go on.

[leo60]

Hope you're soon settled comfy at home xx

[Numptybrain in reply to leo60]

Just got home at 8pm tonight, showed , clean pyjamas and my own bed at last, bliss.

[leo60 in reply to Numptybrain]

Oh I am so happy for you 😊 I hope you slept well in your own bed and that you are feeling ok xx

[Numptybrain in reply to leo60]

It was so lovely, I got a few hours as still struggling with a comfy position but I’m sure I’ll get there, it’s just nice having your own comforts around you and your husband. I can’t fault the hospital staff, they were all lovely.

[leo60 in reply to Numptybrain]

I was in hospital for two months over Christmas and I remember coming home, although I still felt quite ill, my own bed was heaven xx

[Bingo88]

So pleased you have some answers and bet your glad your going home. Hope your appointment comes soon and hope you keep well. Brian

[MoyB]

Nothing can beat that first shower at home and clean pj's, can it?!Glad you're back home and sending best wishes for a good recovery, now that they've identified the problem.

Keep us posted, won't you

Xx Moy

[Numptybrain in reply to MoyB]

I will, just waiting for rheumatologist but they said it shouldn’t be long as they fast tracked me? I couldn’t fault the staff, in fact some of them already know me so it was nice seeing familiar faces.

[Ern007 in reply to MoyB]

Exactly MoyB what i think. Shower unless light headed clean pjs and watch own bedroom telly in comfort, nothing like it.

[Ergendl]

It's a great site, isn't it. I've learnt so much since I joined in 2015.

So glad to hear you're now back home. It makes such a difference, being in your own place instead of the hospital regime. Hope you continue to make strides in your recovery now the doctors understand what's going on.

[Mellywelly]

Hi chook, nothing better than going home. Let's hope your referral comes soon and wishing you all the best 👍 😉

[helenlw7]

This is a lovely site, and people are very good at offering advice from their own experience. I sympathise with you being in hospital. I’ve just been discharged after a 10 week stint - not lung or RA related. I hope you escape soon.

[Loopylorre]

Hi, glad to hear things are improving , keep us posted on when your home & good luck for appointment with rheumatologist & fingers crossed 🤞🏻 it’s not too long away 💐🌹🌷xx

[Thepainterswife]

Hope you’re home and feeling better very soon 🙏 x

[Izb1]

Good the hear you are now home, I am sure you slept well, there is nothing like your own bed. Keep us updated on your news with rheumatology x

[Mooka]

So pleased you have got home. Nothing like your own bed. I hope your appointment comes through soon and you get some answers and treatment.

[dunnellon]

Hope you're home and comfy and feeling better every day!

[Nula2]

Hi 🙋‍♀️Brilliant that you're back home. Fingers crossed for a good recovery 🤞🙂. Take care and keep us posted xxx