The road to transplant: This was the... - Lung Conditions C...

Lung Conditions Community Forum

56,013 members β€’ 66,641 posts

The road to transplant

Karenanne61 profile image
β€’6 Replies

This was the title of an interesting webinar organised by Harefield transplant clinic. Several disciplines gave a short presentation, e.g. consultants, physios, psychologists and nutritionists. I especially liked the physio's statement that we should look upon exercise as 'Training for transplant!' Now, on a dreary, cold day when I have an early class I can pretend I'm an elite athlete and use that motivational phrase to get me out of bed! 🀣

Written by
Karenanne61 profile image
Karenanne61
To view profiles and participate in discussions please or .
6 Replies
β€’
GD53 profile image
GD53

Hello Karenanne61 πŸ‘‹ I admire you so much, you're an inspiration to me how you cope and manage your illness.Been really poorly 😞 recently and thought about you and your amazing resilience to deal with many fearful episodes and win!

Good idea, will try and be an elite athlete too, may help to get me out of bed! 🀣 🀣 Take good care of yourself. Best wishes. Dawn.xx

Karenanne61 profile image
Karenanne61 in reply to GD53

Oh my goodness that's not how I see myself!😊 I'm like everyone and do have some very dark times. I'm so lucky with my husband and daughter (who is my inspiration, she is registered blind but that doesn't stop her. She recently played blind ice hockey! 😱 ) and, strangly, new friends made from the new activities my illness has forced upon me. My husband popped out earlier to run our grandson to karate and asked, as he does, if there was anything I wanted, I was able to answer, honestly, that I was content practising crochet with 60s music on the telly. Little things please little minds.🀣 I'm sorry you've been poorly. It's very hard to stay positive when illness walks through the door. I recommend crochet! It will not beat me! I hope you're feeling better now. Take care Dawn the elite athlete! πŸ™‚

GD53 profile image
GD53 in reply to Karenanne61

Yes we have some dark times but the comfort, care and compassion I've had from our group is wonderful, definitely keeps me going! πŸ₯° Off to clear the lungs and pjs next. Relax and have a lovely evening. xx 😊

Karenanne61 profile image
Karenanne61 in reply to GD53

I'm so glad I found this group. It gives so much. Even our visit to the New Forest last year was inspired by Blackbirds incredible photographs. Take care. πŸ™‚

Caspiana profile image
Caspiana

Hello Karen. So good to hear Harefield work to prepare patients so diligently. This is very good. And yes, exercise is so important it is indeed training for transplant and has to be continued afterwards. Sending love and hugs. xx ❀️

Karenanne61 profile image
Karenanne61 in reply to Caspiana

Thankyou. The days of patients being patient and having things done to them seem to be fading, thankfully. Me and excercise were never very close bedfellows but now it's giving me so much including new friends. I hope you and Chom are well.

Not what you're looking for?

You may also like...

The Transplant Journey update 2

Hello, I wanted to give you guys an update on my mothers lung transplant journey... Before...

Lung transplant Update

Hello All, After having a rocky time being removed from the list as transplant would be too risky...

Transplant Assessment

Firstly can I thank everyone for passing on good luck replies in my last post. Well I went through...

Transplant check up

Now my mind has cleared (this is for informational purposes only as they say lol ) I saw "mos" my...

Lung Transplant

I signed on the dotted line to add my name to the waiting list for a double lung swap. This was on...