Pseudonamus Lung infection

[Annabel23]

Can anyone give me successful stories / treatments/alternative treatments for long term pseudonamus lung infection with underlying bronchiectasis ? Whenever i stop antibiotics symptoms return... : (

[Izb1]

I cant advise on this Annabel23 but give the helpline a call, I am sure they will be able to help with this x

[Annabel23 in reply to Izb1]

Thank you. What helpline ?

[Izb1 in reply to Annabel23]

The one above:-Our Helpline Team are here to help

Call us on 0300 222 5800

[Shonkie]

I was told that Ciprofloxacin or a related antibiotic would work which they did for me. A pharmacist could talk it through with you as a start.

[Tinker26]

I eventually had intravenous antibiotics after being colonised with lung bugs (pseudomonas being one if them), can't take ciproflaxin as suffer from achilles tendon problems, that was 4 years ago and not had pseudomonas infection since x

[Mooka]

The only oral antibiotic to treat pseudomonas is ciproflaxin. Eventually this may not work as the bug becomes resistant. The next course of treatment is iv antibiotics followed by nebulised antibiotics. If you are having recurrent infections you are either on the wrong antibiotic or the course isn’t long enough. Should be two weeks for Bronchiectasis. I hope that helps.

[Annabel23 in reply to Mooka]

Hi. Thank you. I ve already had two lots of IV in the last nine months. Now nebulizing ciproflaxin but when I try and reduce the infection comes back ....

[Mooka]

I have been nebulising colomycin for nearly six years and my consultant won’t let me stop. I am immune compromised though. I’ve had a couple of infections in that time but neither of them was from pseudomonas. I don’t see anything changing until they come along with something else. Sorry not what you want to hear.

[Annabel23 in reply to Mooka]

It's depressing but good to know the facts. I just want to be around for my daughter ! It seems like not enough funds etc are going in to researching alternatives. I m taking high doses of liquid garlic and manuka honey but they don't seem to be strong enough without the antibiotics and they're very expensive ! I wish you the best of luck with it all .

[Hidden]

There is no point in trying to reduce nebulised antibiotics. Their purpose is to keep pseudo numbers down after IV has reduced the numbers that were making you poorly. It is supposed to be long term treatment. Once in the lungs, pseudo stays. It hides even though sometimes it cannot be found on lab plates because the tests do not find very low numbers. The idea is to keep the numbers low enough to be able to lead a full life. We are all different and bronch specialists play hide and seek with it using different nebulised antibiotics.

By the way are you sure that you are nebulising cipro and not colistin.

Several of us took part in trials of nebulised cipro and although it definitely worked for me it was never licensed. If it has been licensed since I would very much like to know because my lungs go into spasm when I nebulise any of the other abs now.

[Annabel23 in reply to Hidden]

Sorry yes I m on colistin

[Hidden in reply to Annabel23]

Thankyou

[Neville33]

maybe you need a permanent nebulized drug, one month on and another off for pseudo..it sounds like u may be colonized…I’m on Colistin, nebulized every other month…lufe savor

[Annabel23 in reply to Neville33]

Ok. Good to know all this . Such a sinister thing. Stay well.

[Oldbadger]

My heart lung Consultant put me on Arithromycin 250mg on Monday, Wednesday and Fridays as I have pseudomonas too.

I will have to take it for life but it’s a small price to keep me well❣️

Hope this is useful for you. I am allergic to Ciproflox@cin by the way.

Best of luck🌷❣️

[Kiaman08 in reply to Oldbadger]

Hi i have the same and am on arithromycin every day i take tab it used to be for the three days but i jad a bad infectio so my consulton decided to change it to 7 days a week I also am on colomcyin via neb and this does keep.the infections under control.for 85 per cent of the time but i still have a bad infection twice a year and unusaly end up starting a IV cousre of antibodics thus time it took.me 3 weeks of IV and 4 weeks of cripro to get rid of the infection but i have been told by my rep nurse that i t cud take upto 6 weeks to recover or get back to my normal.self