Knee replacement

[Currygirl]

Hi again well I've been offered a long awaited knee replacement but now I've been diagnosed with pulmonary fibrosis I'm just really worried about it all it seems to be never-ending worry has anyone else had similar experiences xx

[sassy59]

Hi Currygirl, I’m sure all will be well but it would be a good idea to speak to the doctor doing your knee surgery and explain everything. The anaesthetist could be brought into any discussion too. I hope you can be reassured and all goes well. Xxx

[Currygirl in reply to sassy59]

Thank you Sassy59 I also wondered if anyone else with pulmonary fibrosis has undergone any knee ops and how they coped, hope to get a few more replies xx

[Caspiana]

Hello Currygirl. What are your main concerns? 🤔 That would make it easier to answer your post. xx

[Hidden]

curry girl my name is Deborah I too need a knee replacement I have been assessed for surgery three times, the consultant says because I take nintedanib the anti fibrotic drug I risk complication from infection and may need heal well so I just don’t know what to dohi

[Currygirl in reply to Hidden]

Hi I'm not on ninexantib yet but hope to be I don't know how they decide who is x

[Hidden in reply to Currygirl]

Hi I’m Deborah, I think they wait for your lungs to be at a certain percentage..it took a while for them to get the right diagnosis, I was first told it was interstitial lung disease. I have been taking it for six months.there are side effects, nausea/diarrhoea .some days I have no side effects.there is another one called perfenidone. I should ask your respiratory consultant if you can have one of these anti fibrotic meds

[Currygirl in reply to Hidden]

Ok thanks x

[Hidden in reply to Currygirl]

thanks for getting back to me x

[Currygirl in reply to Hidden]

Hi again I think they mentioned that inerestial to me but I don't understand I thought I had p fibrosis isn't it the same

[Hidden in reply to Currygirl]

there’s lots of different ones, they should say which type you have. Have you had a Vats biopsy? That’s the only way to give you a sure diagnosis of which one it is x

[Hidden in reply to Hidden]

I’ve also been assessed for lung transplant, Havnt been put on the list yet and will be assessed again in July

[Currygirl in reply to Hidden]

No what the heck is that how long did you wait to be put on ninedtab

[Hidden in reply to Currygirl]

I don’t want to frighten you, you may have it mild, and probably Havnt got what I have ,it’s a video assisted thorascopic biopsy.excuse the spelling. Not very nice, as soon as I was told I had idiopathic pulmonary fibrosis and he had looked at the spirotromety tests that’s special breathing tests which I had been having every six months he offered it to me

[katieoxo60]

Hello Currygirl, I believe the rule is as long as your other health is under control you can have an op . However remember the risk is always more and recovery might be a little longer. Every best wish. But make sure the surgeon ect know your health status.