unsure

[blackscooter]

All tests tested, and the result is I have 30% of my lungs working am told another appointment to chang medication in 8 weeks, that has now been canceled and no new one was made, sinds my diagnosis, everything I have been told are hard facts %s and figures, my wife is the best support you can wish for, however emotionaly it would help if there was someone I could talk to that knows things without being explained what it feels like, that to buy tickets for the next football worldcup would be a waste of money, some people you can see face to face to laugh and if needed cry with but people who know!

[Karenanne61]

Hi. I'm no 'Pollyanna ' but for me it's important to have things to look forward to. Not football though! 😂Theatre trips, days out, holidays. I think this attitude was started by a doctor many years ago who told my parents , when my brother was very sick, to plan and book a holiday in the hope he would be well enough. (He was!) It would be nice to be able to chat face to face with others but at least we have this option. There may be other posters who know of face to face groups, or you could start a local one.

[Patk1]

I'd ring consultants secretary re appointment x

[Monty11]

my husband had mild copd and following a dreadful bout of pneumonia in January 2020. (Unsure if early covid or not) was left with a 31% lung function. He was unable to go back to work but worked hard to try a small walk each day, ride an electric bike and try not to think of the numbers. He has good days and not so good. The only advice I can give is to be positive. A number is just a number it’s not how you are or how you feel. Good luck and book those tickets

[Izb1]

There have been many posts from people on here who have been given a year or two to live and have still been around many years after. We have to live for today and enjoy it, do the things you want to do and be positive. Look for groups near to you where you can go and have a chat if you feel the need and get on the phone for a new appointment, chase up the secretary. Have you thought about a pr course , not only is it educational for your lung condition you will also meet people that are in the same boat, it may be helpful, ask the hospital or your gp. Its hard coming to terms with our lung problems as it affects our everyday life in many different ways but trying to be positive helps. This site has many different people all with lung problems that offer invaluable support and advice and am so lucky to have found it x

[Alberta56]

It takes a lot of energy to set up a group. Would a very gentle exercise class suit you? where people might be more understanding of the limitations our conditions impose.

[Tykelady in reply to Alberta56]

Excellent suggestion.

[GD53]

Morning pet. I was diagnosed with lung disease 13 years ago. At the time was working but suffered recurring chest infections. I found my diagnosis "a bitter pill to swallow " infact went down a "black hole" and it was difficult 😐 to get back out!

My gp is marvellous and really listens, I'm lucky 😊 She started me on an antidepressant, just mild but it has helped me through my most worrying and miserable times.

All I want to say to you is, time to look after YOU. Time to reflect and be positive about the future.

Nothing is insurmountable and I know you will have precious, happy times ahead 😊

Best wishes. Kind regards. Dawn.xx

[Tykelady]

Do you have a local Breathe Easy group or a respiratory team who can support you? I recently lost a good friend from our pulmonary rehab days and miss our shared moans and groans so much.

[Ergendl]

Hi. You might like to see if there is a Breathe Easy group running near you. Check out blf.org.uk/support-for-you/... and then contact your nearest group to make sure they are still running as some have closed since Covid restrictions stopped everything.