brief hello again: I’m still on a few... - Lung Conditions C...

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brief hello again

eleanordigby profile image
99 Replies

I’m still on a few other HU groups and got numerous “alerts” about my goodbye post, so I’ve popped back to answer the kind ones, but was taken into hospital yesterday so please give me a day or so. Just to explain - because I objected  to the person posting anti-vax misinformation and links to very right wing US websites, they then targeted me numerous times on 2 or 3 threads, which wasn’t pleasant. I reported this obviously but I also appealed for support & for others to report. No one did, which is why I felt isolated. Eventually the posts were removed so if you didn’t see them & yourself have only ever had good experiences here - well I can only say I’d have no reason to make this up.

99 Replies
Gloryvine profile image
Gloryvine

I would have reacted in the same way, eleanordigby. I hope you are okay! The extreme US anti-vax stuff is just plain toxic and really distressing. You are obviously a well informed and valued member of this community with a lot to offer. I'm glad the offending posts have been removed, many people are supportive even though they didn't see the posts. What has upset me, frankly, are the people judging and second-guessing your response! It's borderline verbal abuse, in my opinion, to label or criticize someone's feelings about an issue. Very best wishes and hope you feel better very soon. xx

eleanordigby profile image
eleanordigby in reply to Gloryvine

very kind of you to say that, gv

yes I found that oddly more hurtful, - it’s kind of saying “well I’ve always found people supportive, so it’s obviously you” - even more isolating 🙁

Daisychains01 profile image
Daisychains01 in reply to Gloryvine

I have to agree as well! Even though miscarriages, infertility and myocarditis are up, and insurance companies have reported a 40% increase in deaths UNRELATED to covid since 2020, I agree that we should still get boosted. It's just crazy not to.

Daisychains01 profile image
Daisychains01 in reply to Gloryvine

They are probably judging her because they don't realize that our government wants the best for us! They would never put out a vaccine that could harm.

teddyd profile image
teddyd

Sorry to hear you are poorly. I never saw the posts you are referring to. These kind of posts and behaviour towards you certainly should not be allowed.In the past I have reported people for comments/ behaviour and views that I feel are inappropriate or dangerous.

Once I have reported them I have never had a response from the moderator or healthunlocked. Maybe a post reminding people what is non acceptable post are and how to report them would be useful .

Can you block people like you can on Facebook ? Maybe more moderators are required to stop intimidation or bullying.

Wishing you a speady recovery.

eleanordigby profile image
eleanordigby in reply to teddyd

no I don’t think there’s a block button… but the person has gone now

thanks for your good wishes

Daisychains01 profile image
Daisychains01 in reply to teddyd

I don't even understand why anyone with opposing views would want to speak here. That is so odd to me.

sassy59 profile image
sassy59

Hoping you’re home from hospital soon. I’m sure nobody thought you’d made things up and I did eventually find the post. I hadn’t understood how much flack you’d taken on other threads which is not allowed and not nice. That sort of thing is rare however so no need to leave the site unless you really want to.

Best wishes to you Eleanor. Xxx❤️

eleanordigby profile image
eleanordigby in reply to sassy59

thank you for that sassy, I’m glad you understand

Thinkhealthy profile image
Thinkhealthy in reply to eleanordigby

I hadn’t seen any of the posts or horrid comments. But I know how hurtful it can be when judgements are made - hope you are out of hospital and feeling better soon . X

eleanordigby profile image
eleanordigby in reply to Thinkhealthy

yes it is hurtful especially when you’re feeling low and people tell you it’s just you - thanks for understanding x

Daisychains01 profile image
Daisychains01 in reply to Thinkhealthy

I think I know who she is talking about. The one I read was one of those conspiracy theorist...LOL!!! We have a few today.

CDPO16 profile image
CDPO16

I never thought you had made it up. I have seen such comments in the past, just not on the occasion you experienced. Equally, your requests for support may not have been seen but I can assure you that the majority of us have no time for anti vaxxers and trolls.I hope that you will soon be well enough to leave hospital. Best wishes.

eleanordigby profile image
eleanordigby in reply to CDPO16

thank you

Oshgosh profile image
Oshgosh

xx

Otto11 profile image
Otto11

Hope you feel better soon. Take care x

Bevvy profile image
Bevvy

I know, that no one on here will think you were making anything up! I DID find the post you were referring to but it took a little time to find and go through all the different replies. Am sorry you feel unsupported but I think people didn’t realise the flack you were getting. I certainly didn’t! I suspect one reason for this, is you didn’t write the original post and it was “deep inside” a whole load of replies.

Hope you out of hospital soon and feeling better.

eleanordigby profile image
eleanordigby in reply to Bevvy

thanks bevvy - usually in for two or even three weeks but am taking it one day at a time

not my preferred hospital but I’ll cope!

Damon1864 profile image
Damon1864Volunteer

I would have reacted exactly the same as you, as for people saying nasty things , I personally think that is disgusting. I hope you feel better soon and get out of hospital soon. You take care and get plenty of rest. Have a good day 😊 Bernadette and Jack 🐕 xxxxxx 🌻🌻💖

eleanordigby profile image
eleanordigby in reply to Damon1864

so glad you get it, Bernadette 😊

Morrison10 profile image
Morrison10

must admit don’t have time to read all posts, didn’t see offensive ones, glad they have been deleted. Think it’s good that HU lets us post other things not just health related. I was born with PCD has affected all 87 years but have not stopped me doing things until recently, and have done posts about my adventures etc. Hope you’re out of hospital soon, good luck, Jean x

leo60 profile image
leo60

Hope you feel better soon xx

O2Trees profile image
O2Trees

Ah - only just seen this post Eleanordigby. I hadnt realised how you had been targetted in the way you describe. That shouldnt happen. And for the record, it never occurred to me that you had made anything up. I think what Bevvy says above is right - that sometimes unpleasant stuff can get buried with a thread of replies so we often miss it. I know that happens to me. I hope you recover asap - never nice to be in hospital. Take care :)

eleanordigby profile image
eleanordigby in reply to O2Trees

thanks O2trees 😊

corriena profile image
corriena

Iv not seen anythink like you have recieved. I do not doubt you at all.( Iv not been totaly involved lately). I do find it sad you feel unsuported as iv always thought that is one thing this group dose well. Unfotunatly by leaving trolls win we loose , but more importantly you must concentrate on you and getting as well as you can. I hope you are feeling better and home soon.

eleanordigby profile image
eleanordigby in reply to corriena

thank you, I appreciate your kindness

Alberta56 profile image
Alberta56

Get well soon. xxxx

Patk1 profile image
Patk1

Hope yr soon feeling better xx

slram profile image
slram

Ignore people, it isn't worth it. And I am anti-vax also, which must make me wrong too. But see, I think you're wrong so who cares? We must get along, everyone is different. If someone has a differing opinion, that is fine. We are adults.

LissacFrance profile image
LissacFrance in reply to slram

People do care though. Antivax is misplaced ideology with no scientific backup. I for one am pleased to have had the covid vaccine to name just one. If vaccines are so bad could you explain why there is no longer any Smallpox around?

Izb1 profile image
Izb1 in reply to LissacFrance

I have to butt in on this reply as I have been reading alot just lately about the covid vaccine and have decided not to have anymore, unless something drastic changes my mind. I think this is a man made disease so doesnt behave the same as all others so you cant compare this to other diseases and how vaccines work. This is only my opinion and I am not antivax but there has been alot covered up regarding covid so have become wary. By the same token I dont think anybody should suffer abuse for their opinion as eleanordigby did x

LissacFrance profile image
LissacFrance in reply to Izb1

Nobody should suffer abuse, I totally agree. But neither should unproven facts be bandied about.

Izb1 profile image
Izb1 in reply to LissacFrance

I couldnt agree more that there are so many people posting unproven facts and sometimes complete nonsense we have a terrible time sorting fact from fiction.

Patk1 profile image
Patk1 in reply to Izb1

Very true Izb1.it goes on here too.my thoughts are,dont spout an opinion as fact, research it first or say its just an opinion.

eleanordigby profile image
eleanordigby in reply to Patk1

there’s a requirement that people back up their claims with evidential links but many don’t, and this person was linking to US sites known for promoting hate speech & conspiracy theories eg bitchute. Another one praised childrensdefenseorg - now, when kids are exposed to this dangerous ideology, that really does get to me

JJ_7 profile image
JJ_7 in reply to eleanordigby

There are some people who have personality problems with authority of any kind. Many controversial issues provide a vehicle for them to ventilate their distrust and they engage in sophistry. I just smile and move on and don't let them irritate me. I Hope you are feeling better soon Eleanor. Thinking of you xxx

slram profile image
slram in reply to Izb1

Well said, thank you.

Ergendl profile image
Ergendl

Get well soon, Eleanor.

eleanordigby profile image
eleanordigby in reply to Ergendl

thank you - I’m trying!

Milandra17 profile image
Milandra17

Hope you're soon home from hospital. I don't often post but had to say that I can imagine how it all made you feel and send you best wishes. I hope you reconsider, take care x

eleanordigby profile image
eleanordigby in reply to Milandra17

oh I do appreciate that Milandra, yes I did feel kind of up against a wall fighting a tide! but that particular person has gone 😊

min-min profile image
min-min

Oh how awful for you. Hope you are OK. Take care of yourself x

eleanordigby profile image
eleanordigby in reply to min-min

oh thanks min-min, you too 🤗

Thepainterswife profile image
Thepainterswife

I hope your feeling better soon , the last thing anyone on this forum needs is more stress so I hope you can put this unpleasant episode behind you safe in the knowledge that you do indeed have the support of the vast majority on the forum 🥰 I also hope you’ll reconsider and stay on the forum x

Izb1 profile image
Izb1

Hope you get better soon and dont have to stay in hospital too long. I didnt see your post byt so sorry you suffered abuse and felt you werent being supported. I dont usually interfere in posts unless its gets out of hand but would report it x

eleanordigby profile image
eleanordigby in reply to Izb1

thank you, I hope it doesn’t happen again, from what people say it sounds like an unusual thing here so maybe I was just unlucky the person chose me to pick on x

Izb1 profile image
Izb1 in reply to eleanordigby

It is unusual on this site, not there havent been a few little scuffs with people, but in general we are a good bunch, so it must have been a one off. Try to put it behind you and look ahead, you have enough to cope with at the moment x

Patk1 profile image
Patk1

Hope yr feeling better+ well soon x

Karenanne61 profile image
Karenanne61

I'm sorry this happened. Some days I only 'pop' on here so I'm not always up to date. I wish you a very speedy recovery.

eleanordigby profile image
eleanordigby in reply to Karenanne61

more steady than speedy by the sound of it but as long as I get better eventually that’s good enough 😊

JJ_7 profile image
JJ_7

Hope you get well soon and I look forward to reading your posts! There is no room here for anti-vaxxers. I am guessing that I would be long gone had I not followed medical advice and intervention. Thinking of you xxx

gejay profile image
gejay in reply to JJ_7

With respect who are you to say who is welcome and who is not on here, I find your comment very offensive.

JJ_7 profile image
JJ_7 in reply to gejay

I am sorry this has upset you .

gejay profile image
gejay in reply to JJ_7

I am not upset I am offended and you have not answered my question. If you think that you have a say in who can come on the site then I need to know.

eleanordigby profile image
eleanordigby in reply to gejay

Perhaps you’re not aware of HU’s policy on anti vax advice, so I’m posting it here for you to read healthunlocked.com/more-list

eleanordigby profile image
eleanordigby in reply to gejay

ah - to find it you need to click on Help, Answers, then type Misinformation Policy at the bottom

but here is an extract

“HealthUnlocked takes a zero-tolerance approach to misinformation, disinformation and any users or groups that create or spread it.  Misinformation is content that is false, inaccurate or a distortion of facts or events.  Any misleading content that could cause harm to the trust and safety of the HealthUnlocked community or the public will be removed. This includes, but is not limited to: Medically unsupported health claims that risk user safety including: anti-vaccination advice, promotion of false cures, or misinformation about public health issues”

gejay profile image
gejay in reply to eleanordigby

What has this to do with me.?

Maggie_Mae profile image
Maggie_Mae in reply to eleanordigby

it also states

Political Posts We don’t allow political posts or comments on the forum. These will be removed

eleanordigby profile image
eleanordigby in reply to JJ_7

Me too, don’t think I would’ve got past infancy. I’m so dependent on, and grateful for, modern medicine and now the massive efforts by scientists the world over to bring us these vaccines. Science rocks! Yes they had to be rushed through regulatory authorities to some extent but the alternative was millions of deaths. You only have to look at the 1918 pandemic - 50million dead!

Mavary profile image
Mavary

Hi! I know it’s not the same but I had a very good fiend until Covid came along. I’m pretty sure she must have been unstable because she was really anti vax. She would look up things from these American sites and print anything that was anti vax. In the end I got so fed up with the posts I deleted her. It was such a shame as we had been friends for quite a while. So I don’t blame you being angry but if the group helps you and your complaint don’t let that sort of person win. They’ve now been deleted and you can get on with your life without worrying. I know it bothered me for quite a while and this brings it back to me. Luckily I didn’t see any of it. But then I’m not on here too often.

slram profile image
slram in reply to Mavary

You dump friends over their opinions???? I am sure she didn't agree with you either.

Mavary profile image
Mavary in reply to slram

No but I didn’t want to see her comments from different ones in America and goodness knows what condemning the Vaccines which I believe in. It’s her individual choice but it shouldn’t be put out to everyone else. I’m still on her messages but not her Facebook posts.

slram profile image
slram in reply to Mavary

May not agree with different comments, but still like reading them.

eleanordigby profile image
eleanordigby in reply to Mavary

That’s very interesting because the same happened to me! A close friend got sucked into the anti vax vortex and it was like a cult had got hold of her. A very intelligent woman, she became obsessed with this stuff and impossible to talk to, very angry etc. I’ve had to stop seeing her, I couldn’t deal with it, but it’s sad as we’ve had some lovely times together. Of course, although a good bit older than me, she is super healthy and rarely takes so much as a paracetamol!

Mavary profile image
Mavary in reply to eleanordigby

sounds exactly like my friend. It is a shame.

watergazer profile image
watergazer

Hope you are feeling better soon eleanordigby. Glad those awful people have been removed. I May have passed them by as I don’t come on a lot at the moment as I’m busy with childcare I tend to glance at posts 🤗🤗

eleanordigby profile image
eleanordigby in reply to watergazer

Oh you must be my generation, childcare can be a nightmare, ok when it’s going fine but if they get sick and off school it’s so tricky. Or like now when I’m whisked into 5*. I only have one but hoping for another if I can get well enough for pregnancy. My worry is the medication I can’t do without. But I’m very lucky to have one so I’m not going to be silly about it

Timberman profile image
Timberman

Hello again hello again, So sorry to hear your bad experience. I have had the same - whenever I object to anti-vaxxers spreading their false news and lies. Must admit I find the kickback funny mostly and give as good as I get. Had I seen your mail for help I would have weighed in with gusto. Make sure you copy me in if it happens again. Hope the hospital visit goes OK. Have just been taken in for low sats (have sever COPD etc) but a news drug seems to be working well. Fingers crossed (while I still have them!).

eleanordigby profile image
eleanordigby in reply to Timberman

I love your reply, it made me chuckle! Glad a new drug is helping. I’m in my local hospital but they’re taking instructions about treatment from the Brompton so I should be ok, although the actual care isn’t a patch on RBH. I feel I have to double check everything. It’s because they’re inundated with sick people and a lot of staff are off sick too so it’s chaos with knobs on 😬

Timberman profile image
Timberman in reply to eleanordigby

Glad you responded - now I can say it - were you a Rigby and changed?

eleanordigby profile image
eleanordigby in reply to Timberman

ha, no, eleanorrigby had already been bagged so as my first name is Eleanor (or Elly, usually) I went for digby 😊

what’s the story behind your name - were you a lumberjack in a former life 🤣

Timberman profile image
Timberman in reply to eleanordigby

Interesting question. There are five times as many names Wood in the telephone directory than Woods. One theory is that people called Wood worked in the woods and people called Woods owned or at least farmed them. Tosh I reckon as my family has absolutely no connection with timber at least as far back as 1400!

Carsok profile image
Carsok

I am new to this site and have found everyone to be very helpful. I am from the US and have to say I just don't understand the anti-vaxers. I remember being a child and standing in line at school to get vaccinated for polio. (Giving my age away). I've already had 5 Covid shots and at 74 didn't want to take a chance. I'm sorry for how people treated you on here. I like this site as I get to read about how people handle their illnesses and feel that I'm not alone. Hope things get better for you.

spiriva1127 profile image
spiriva1127

Hope you feel better soon and you aren't in hospital too long. Take care.

eleanordigby profile image
eleanordigby in reply to spiriva1127

Thank you, I hope so too. For one thing the Wi-Fi here is c**p!

Nicholatracy profile image
Nicholatracy

I didn’t see the posts but hoping you will stay. Sorry you’re feeling poorly. 🐞

eleanordigby profile image
eleanordigby in reply to Nicholatracy

Oh thank you, Nichola. that’s so kind. Always nice to feel wanted 😊

slram profile image
slram

Refuse to argue politics here.

LissacFrance profile image
LissacFrance in reply to slram

You don`t have to argue but open discussion never hurt anybody.

slram profile image
slram in reply to LissacFrance

Agree 100% but it usually ends up ugly instead of a discussion.

slram profile image
slram

Well said and again, thanks! This isn't the place for this crap, and we all have strong opinions, pro and con. The end.

fayeber profile image
fayeber

The initial post from the lady who had blood clots sadly is now gone. I also had small blood clots, don't know if it was caused by astrazeneca vac, but decided no more covid vaccine for me. Yes have had flu jab. The info from this lady is good to know. Our experiences are not to influence people , but it's important that we share. Whatever anger there is about the previous President of America and antivax groups ect, it shouldn't prevent us passing on information. My copd nurse accepts my decision on this and that it is individual choice. Using nutter ect are all just put down words and not helpful. Take care all.

slram profile image
slram in reply to fayeber

Have read about many after-effects of that "jab". Most very serious and in children also. Then the people who get the vax gets....GUESS WHAT? Covid. How is that a "vaccine"?

gejay profile image
gejay

I sense the hostility to being challenged is coming from your goodself I am not promoting anything antivax but just stating my opinion which seems that its ok for others to do.

Carsok profile image
Carsok

I too don't think our country is what it once was. I'm 74 and I've said glad I'm old and don't have children today. My five are all grown. Don't know how parents handle things today with phones and internet. I like this site as it makes you feel not alone and there are other people out there who suffer from the same ills as I do.

eleanordigby profile image
eleanordigby in reply to Carsok

Yes it’s a shame, the internet is a double edged thing, gives crazy people a gullible audience. It’s so hard to protect our kids from social media too, bullying is rife! Especially of anyone who’s a bit different. Very sad and worrying for we mums and dads

Maggie_Mae profile image
Maggie_Mae

HU rules also states

Political Posts We don’t allow political posts or comments on the forum. These will be removed

eleanordigby profile image
eleanordigby in reply to Maggie_Mae

Yes you’re right. It depends what it means - I take that to mean party politics, brexit etc. Do we include the political hot potato that is the state of the nhs, even though it’s so very central to the wellbeing of us all us here? The cost of living crisis? Environmental issues, the war in Ukraine? Where do we stop. Maybe ban all those, pat us on the head and just keep the medical stuff (but no criticism of nhs failings), pets and nice photos…

Maggie_Mae profile image
Maggie_Mae in reply to eleanordigby

I realise your on a high about all this stuff

Carry on if you wish … just a gentle reminder was all … I’m not getting into a long winded debate … but I can see how others especially members from US maybe offended

It’s Saturday night , chill & enjoy what is really important to you as an individual in real life

eleanordigby profile image
eleanordigby in reply to Maggie_Mae

I’m not on a high, just chatting generally. Although I am on a lot of prednisone which admittedly messes with the head, and keeps you awake. Actually this is the sort of thing which is important to me, and which I find interesting! Maybe I’m just weird, it’s entirely possible 🤣

Tricky to enjoy Saturday night in hospital but I’ll take your advice and have a go. Wi-Fi is c**p in here anyway! I’m in a room on my own so could try some cartwheels? Used to love those. There must be something on tv apart from Strictly and IACGMOOH…

slram profile image
slram in reply to eleanordigby

How long will you be in the hospital? I can imagine how much fun THAT is.

eleanordigby profile image
eleanordigby in reply to slram

a few weeks probably - I’m being looked after well, in isolation in a small side ward, because they’re not sure which bacteria I’m carrying yet or whether it’s dangerous to others, but it’s dark and poky and the tv only has a few channels! Also hardly any sleep as I’m near the nurses’ station so it’s very noisy. But I’m lucky to have a bed at all, nurses here have voted to strike, and the hospitals are very full! One day at a time…

slram profile image
slram in reply to eleanordigby

Oh God I'd go nuts. When will they know something????

eleanordigby profile image
eleanordigby in reply to slram

nah course you wouldn’t, you’d deal with it like we all have to at times! what else can we do? main thing is I’m being looked after with great skill and kindness 😊

no results yet but they’ve started treatment, it just doesn’t seem to be working (yet) but oddly I don’t feel that ill, just unwell and very poor breathing

slram profile image
slram in reply to eleanordigby

You're being treated but they don't know what it is? Are they giving you antibiotics? Who knows what all is going around today, all these variants and sub-variants of Covid. What ever happened to good old fashioned colds? Maybe when they figure this out they'll send you home with meds. try to keep your strength up somehow and drink water......

Patk1 profile image
Patk1 in reply to eleanordigby

Ask for earplugs or cotton wool x

Patk1 profile image
Patk1

Just a thought = to save invasion o of posts by outside influence - whn u post,pls select the option " community only" at the bottom

eleanordigby profile image
eleanordigby in reply to Patk1

ah I didn’t know about that option, I’ll definitely change to that, great idea 👍 thanks Pat

slram profile image
slram

That is why kids need spoken to about it and any kid with self-esteem should hold up well. Then there are just plain bad parents with emotionally disturbed kids. I could go on and on but you are well aware.

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