Hi
We’re working with a researcher who is looking into the impact of antibiotics to treat COPD. If you’ve ever been prescribed antibiotics for three months or more to treat your COPD, we’d love to hear from you to help shape this research. Take our new snap survey now, it’ll only take two minutes! auk2016.typeform.com/to/FeV...
Thank you
The Helpline Team
Would love to but all I get is an error message on my phone. May try Pete’s iPad. Xxx
Hi there, sorry to hear you're having issues. I've done a few tests and things seem to be working on our end, but let us know if the issue persists. Thanks!
I just get 400 Bad request with most links nowadays. I’ve no idea why. Xx
Doesn't bronchiectasis come under the umbrella of COPD? I nebulized the antibiotic colomycin for three years.
Hi RoadRunner44, thanks for your comment. The researcher we're working with specialises in antibiotics to treat COPD on this occasion, but we'll continue to work with researchers across all lung diseases so please keep an eye out for similar surveys in the future.
Bronchiectasis is not part and parcel of COPD but a standalone condition. COPD encompasses several conditions that cause narrowing of the airways, with the main two being emphysema and chronic bronchitis, although many people just get told COPD at diagnosis without any specific differentiation. Bronchiectasis is obstructive in nature, but caused by the abnormal widening of the airways.
Yes, you are right Charlie but sadly, even some medical staff still tend to place bronchiectasis under the umbrella term of COPD. In fact my current consultant felt she had to try and change this by helping to set up a new Pulmonary Rehabilitation Programme strictly for bronchiectasis sufferers to educate and demonstrate the difference. In her opinion t is very obvious that not enough research is done on bronchiectasis.Thank you for clarifying the difference between the two conditions and let's hope the researchers can include us bronchiectasis sufferers too, in a research project in the near future.
Charlie told them that. Was told I had to see surgery asthma nurse and and the answer was that it is the umbrella that all the lung diseases come under That's how they see it. !
Then they’re not properly qualified to be doing their jobs. Saying bronchiectasis is a COPD would be like saying cf is - it’s a different mechanism of lung disease, which is why the treatment model is (or should be!) different. A quick Google gives you that information from a variety of reliable sources. The only similarity is that they all cause obstructive lung disease. Honestly, not aimed at you Jaybird, but hearing this stuff drives me absolutely nuts. How can patients be expected to understand their illness and manage it if the medics they encounter at community level don’t give the right information? It’s absolutely an obstructive disease, but it is not a form COPD, and shouldn’t be treated as one.
That was the nurses reply when I told her nearly all you've said . She just doesnt know anything and is also near retirement age ,. All she does is check yot inhaler use and take a peak flow reading. Complete waste of time . I have to go along with them but have I asked to see a bronchiectasis specialist and am now on l wait l ist and existing consultant just took me off his list . So not seeing anybody in present situation ..
Sounds about right re. the nurse. Many of the medics I meet don’t know what they don’t know outside of their particular specialties, and GPs aren’t specialists in anything. I’m sorry about the wait but glad you’ve asked to be referred; it’s only personal opinion, but I’d rather wait for experienced, correct treatment, than have regular poor care that could potentially make my condition worse if they don’t know what they’re talking about. Taken as a measure on its own, my understanding is that peak flow is pointless in bronchiectasis. Not much use in COPD, either! 👀😂
Thanks Charlie for at least making me laugh and your information is always worth a lot. How is the bod? Havent heard anything lately. I havent szid before but my step-grandson was diagnosed as having cystic fibrosis as a baby when in hospital but eventually some time after went to see a CF specialist ( top man then ) in Leeds and was told that it was not C.F.. . This was especially important to me as I was working in resp lab at time and seeing sputum specimens from young children with CF. They were told he had lots of extreme allergies and life was spent avoiding all these problems . This was 40 years ago he is now a strapping man ,married has two boys and 2 dogs and eats whatever with no problems , has completely grown out of all those allergies that almost killed him when a baby.Three cheers for specialists who know what they are talking about.
I have been on antibiotics three times a week. I have not had a flair up or been to hospital for the past eighteen months.
Thanks Davyroy. I'm so pleased to hear that you haven't had to go to hospital recently. If you haven't done it already, we'd love to hear your thoughts through the survey. And such a lovely pic!
Copd.
COPD Infection
COPD or not
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