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NHS are about to share your data

Zenga profile image
11 Replies

If you have any worries about the NHS sharing your personal data with third parties who will not need your consent for thier purposes... You need to opt out before 3oth June 2021.

Follow link - scroll down and click "start now" button (see below). You need your NHS number and will have to verify it's you by a text on your mobile phone.

nhs.uk/your-nhs-data-matter...

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Zenga profile image
Zenga
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11 Replies
Nickcv profile image
Nickcv

Where does your June 30th deadline come from? Once you click on the link it says the following.

Here's what you need to know:

There is no 30 September deadline for opting out of sharing your data. You can opt out at any time.

NHS Digital will never sell your data.

There are strict rules about how the NHS can use your data. It's only shared securely and safely.

Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.

peege profile image
peege in reply toNickcv

Use this service to:

choose if your confidential patient information is used for research and planning

change or check your current choice

Your choice will be applied by:

NHS Digital and Public Health England

all other health and care organisations by 30 September 2021 (delayed from March 2020 to allow organisations to focus on the COVID-19 outbreak). Read more about the extension to the compliance deadline for national data opt-out.

Any choice you make will not impact your individual care.

peege profile image
peege

Thanks Zenga. Important to be reminded that we can exercise our right to choose if we so wish 👍

O2Trees profile image
O2Trees

This link contains the information about opting out and the deadline is 23rd June, not the 30th, see number 1 on the page.

medconfidential.org/how-to-...

NHS Digital seem to be keeping this date quiet but if you want to opt out you need to do so by the 23rd. If you miss this date it will be too late. Some people think GPs will be selling our data - they will not. But those they share it with may use it in any way they wish - there will be no restriction, and its likely your data will eventually get sold to insurance companies. This is one way our NHS is being monetised.

There is a link on the Med Confidential page to an opt out form which you can print out. and take to your GP.

CDPO16 profile image
CDPO16

It has just been on the lunchtime news that the government has now delayed this until September

Annie31 profile image
Annie31 in reply toCDPO16

Probably as a result of Hancock being questioned by different MPs in the Commons yesterday teatime! I think they thought if they kept this low key they could get away without it being questioned even, by the majority of the general public. Whatever the reasons for doing it, rightly or wrongly, this should have been broadcasted more for people to know about their options. I wouldn't trust this lot to run a bath!

CDPO16 profile image
CDPO16 in reply toAnnie31

There has just been an interesting debate about it on the Daily Politics programme on BBC2 if you have Iplayer and are interested in seeing what was said.

Annie31 profile image
Annie31 in reply toCDPO16

Thanks Carole, I'll catch up with it later, my IPlayer doesn't seem to want to work properly at the moment!

CDPO16 profile image
CDPO16 in reply toAnnie31

Hope it behaves itself later xx

Pentreath profile image
PentreathVolunteer

Thank you Zenga -I’ve logged on and declined to be included.

O2Trees profile image
O2Trees

In case anyone's in doubt about opting out, dont take it from me. No less and authority than Susan Michie from Sage AND Indie Sage is herself opting out.

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