Bronchiectasis

[Janlyn1953]

Has anyone had continus chest infections.

I keep getting infections, and having Antibiotics.

However these past few weeks I am struggling with Breathlessness when I do things.

I feel completely tired out, lethargic, and very poorly.

I just dont seam to be getting better.

Does anyone suffer the same.?

Janet ☹

[RoadRunner44]

Perhaps the time has come for you to provide a sample of your sputum to your doctor This will ensure the anti biotic you are given is the correct one for the bacteria to be treated effectively.

[Janlyn1953]

Hi.I've taken a sample and I'm on the right Antibiotics.

The doctor wants me to have another CT Scan, but at the moment I dont want to go to the hospital with the virus being so bad in my area.

[RoadRunner44 in reply to Janlyn1953]

Hi, I'm give my sputum samples to my GP surgery and they send them to the hospital for analysis. If I was getting regular chest infections like you are I'd be concerned too. Are you under a consultant? If so, ring the secretary and explain what is happening to you. Otherwise you have to contact your doctor. This must be so wearing.. Good luck and I hope you feel better soon.

[Janlyn1953 in reply to RoadRunner44]

Thank you for your reply.My doctor has written to my specialist.

I Have Aspergillosis which effects my Bronchiectasis, also Allergy Asthma.

My doctor Is trying allsorts but I have a allergic reaction to so many drugs.

Unfortunately I hardly seam to get mucus up.

My doctor is phoning me this morning, these Antibiotics I'm on havent helped at all.

[RoadRunner44 in reply to Janlyn1953]

I'm so sorry, you must be feeling so helpless at what else you can do. I hope you got some help from your doctor this morning to put your mind at rest.X

[Alberta56]

I felt like this during the summer. It took a long time to get me on the right antibiotics and then for them to make me feel better. At the moment my breathing is fine, but I still get very tired. I think it would help if I could get more regular exercise, but lockdown and cold make that difficult. I have bronchiectasis too.

[Kpacific]

I’ve been diagnosed with Bronchiectasis for 4 years. I had exacerbations every 3 months for the first year or year and a half. I accidentally found that I wasn’t clearing my lungs. I was using the huff and cough method while seated. I happened to get down on the floor one day after my coughing session. Laying on my side, I started coughing up loads of stuff. From that point to now, I do my clearance on the floor...left side, right side, back and on my knees and elbows. I do huff 3 times before coughing and I work puzzles to pass the time. I haven’t had an exacerbation since starting my postural drainage techniques. We are all different, and I think that we each have to find 'our' way to successful daily lung clearance. I do believe that clearance is the key to reducing exacerbations. Good luck to you and hope you feel better soon.

[B_Asthma]

Hi,

I have the same issue and I have lost count the number of infections this year.

I have been given Carbocistine to help clear the phlegm and it has done wonders. Also, I have been given Diltiazem to help with blood pressure. The combination of the Carbocistine and Diltiazem has cleared my shortness of breath. I am hoping both medications will break, for the time being, the cycle of infections.

[Bronchi1]

I used to be like that but am not now and I put that down to a number of things. I had a lung wash , I retired, I exercise and take supplements such vit C, D, fish oil and Zinc . I also stay away from under 5s as they carry a lot of bugs which don't affect them like us. Avoid anyone with a cold and eat well. Obviously, this is my regime and it doesn't suit everyone. Good luck.

[Janlyn1953 in reply to Bronchi1]

Hi.I'm afraid I do all that you do, but unfortunately, things are not to good at the moment I have Aspergillosis which effects my Bronchiectasis, also allergic Asthma, so at the moment they are trying different drugs , which I'm unlucky with some as I have allergies to drugs, so it's a vicious circle.

Thanks for replying.

Janet

[Lfcpremier]

Hi.. When I wS first diagnosed 10yrs ago(aged 55yrs) I kept getting chest infections... & then I was put on azithromycin as a prophylactic. Initially I took 1 daily for 3 weeks but then ( because my stomach was affected) cut down to just 3x weekly. I found a big improvement & the consultant has kept me on them ever since. 9 years! I believe many with Bronchiectasis take them. Good luck! Linda x

[skipwork]

I have got severe brochiectasis. I do three long lung drainage sessions on a sloping bed - two of them being for 1 hour each time - the afternoon session being for 40 minutes.. Are you doing your lung drainage sessions? It takes some discipline.

I use a nebulizer

Carbocisteine capsules

Sterimar sea water spray (from the chemist)

Mometanone furoate nasal spray.

It sounds a lot of medication, but it is working for me. I've kept clear of infections for 7 months.

[Megan321]

Airway clearance is essential with lung disease..also nebulizing 7 percent saline x2 a day will keep infections at a distance..exercise the best you can..drink slot of water, boiled 10 minutes

[Patk1]

Im the same and its extremely tough.u have my sympathy xx