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Centrilobular emphysema

Hometeam2016 profile image
6 Replies

Hi everyone last week I had a phone call from my lung consultant everything was fine then when I asked to revisit my ct scan he mentioned emphysema changes never has he told me I had this , now I’m scared I’m worried and have been a nervous wreck since , been emotional non stop can’t sleep , eat I’ve tried phoning emailing but his on a ward a bit busy , his secretary mentioned nothing on notes to gp but on his notes it was mentioned centrilobular can anyone help me understand? Or at least put me on ease I’m 39 asthmatic never smoked

Thank you xx

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Hometeam2016 profile image
Hometeam2016
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6 Replies

Perhaps phone the nurses on the BLF helpline who will be able to guide you further on this.

blf.org.uk/support-for-you/...

You can also request a copy of your CT scan report from the lung consultant's secretary.

Hope you are able to get further clarification.

Best wishes

sassy59 profile image
sassy59

Thinking of you and hoping you get some answers and support. Take care xxx

skischool profile image
skischool

Centrilobular emphysema is primarily damage to the airways and alveoli of the upper lung area,treatment to slow progression is usualy by means of inhaled Beta-agonists.healthline.com/health/copd/...

Try not to alarm yourself as your diagnosis may be at the mild stage and well supported by the recommended treatments but obviously only your consultant we be able to advice you of that.

In the meantime try to practise all those elements of healthy living for those with a diagnosed lung condition that you will often find talked about on here.

Best wishes Ski's and Scruff's :)

O2Trees profile image
O2Trees

Sometimes the explanation for young(ish) people who have never smoked being diagnosed with emphysema can lie in a genetic condition called Alpha-1-Antitrypsin. This shows up in the blood so ask your GP for an A1A blood test to rule this out if you've not had this already. Take care :)

Hometeam2016 profile image
Hometeam2016 in reply toO2Trees

Thank you x

Alberta56 profile image
Alberta56

Cor blimey. The name of your diagnosis is enough to put the frighteners on anyone. Try not to worry. Youth is on your side. Once you know the facts you will be told the best course of treatment to help you live well. xxx Alberta

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