High Carbon Dioxide

[mary1956]

Saw the oxygen nurse for the first time as all other assessments were done my phone because of Covid. It was decided the pulsed oxygen I have been on (INOGEN), isn’t enough as even on the highest setting which gives 1.8litres of O2 my SAT’s drop to 75% with the slightest exertion. But when I was given continuous oxygen a blood test showed that I’m not getting rid of enough carbon dioxide, which can cause problems. It’s been decided that I am to use oxygen when moving, but not when I’m sitting or sleeping. It’s hoped that when moving I will blow off the CO2. Problem is without oxygen my SAT’s when stationary are still only 85%. So hard to know which is worse , low O2 or high CO2.

Sorry for long post.

[telboy41]

I've had the same problem for at least 20 years, But was told by my consultant to use my bi pap more during the day & also at night with oxygen to clear the CO2 which touch wood it seems to do the trick

[mary1956 in reply to telboy41]

Thank you

[Joy123]

I’m on oxygen 24/7 and retain carbon dioxide. In January I was prescribed a bi-pap machine purely to expel this. I use it every night and it seems to have done the trick. Joy x.

[mary1956 in reply to Joy123]

Oh that’s interesting, thank you

[SusieQs in reply to Joy123]

Hi Joy, I'm being assessed for bipap but it's fallen by the wayside at the moment because of covid. Can I ask how bipap helps you and is your breathing any better. Thanks.

[Joy123 in reply to SusieQs]

I don’t actually feel any benefit from the bi-pap machine, certainly no improvement in my breathing, in fact it’s got worse but I expect that’s a coincidence. I’ve been informed that my carbon dioxide level has dropped to a very safe level since using it though. Sorry I can’t say “it’s amazing” as, for me it isn’t. Joy x

[SusieQs in reply to Joy123]

Thanks for replying 🤔