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Living with COPD

Candypop profile image
22 Replies

Hello everyone. I'm Sue I have recently been diagnosed with COPD. I am using a Salamol inhaler at the moment. It will be a comfort to hear from you and to read of your experiences.

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Candypop
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22 Replies
sassy59 profile image
sassy59

Hi Candypop (Sue) welcome to the forum, nice to meet you. I hope the salamol inhaler is working well for you and you’re being supported by your doctor.

I’m carer for my husband Pete who has COPD (bronchitis), sarcoidosis, heart and back problems. He also had severe sepsis 2 years ago.

We’re staying home because of the virus so Pete is doing well health wise.

It’s a great idea to eat well, drink lots of water to stay hydrated and exercise however you can. Stay as healthy as possible and chat to us as we’re all here for you.

Take care xxx😘

Candypop profile image
Candypop in reply tosassy59

Hi, Sassy. Thank you for your warm welcome. I'm so glad I found this wonderful forum. I'm glad to hear Pete is doing OK, thank you for your support, and both take care. X

sassy59 profile image
sassy59 in reply toCandypop

😘👍❤️

leo60 profile image
leo60

Hi Sue and welcome :) You have found a group of wonderful people with vast amounts of knowledge, experience and empathy, I wish I had found it when I was first diagnosed !

What sassy said about staying as healthy as possible is great advice !

Look forward to chatting soon :) Laurie xx

Candypop profile image
Candypop in reply toleo60

Hi Laurie, thank you for your warm welcome. I'm so happy to have found this wonderful forum, which will greatly help me through this.

leo60 profile image
leo60 in reply toCandypop

😘😘 xx

CDPO16 profile image
CDPO16

Hi Sue and welcome. I learnt most of what I know about COPD from being a member here. The BLF have lots of useful information and advice on how to stay as active and healthy as possible.

Candypop profile image
Candypop in reply toCDPO16

Hi, thank you for your warm welcome. It's so good to know, there is advice, support and useful information, that I can read up on, and chat to people who are in a similar situation, take care.

HungryHufflepuff profile image
HungryHufflepuff

Hello and welcome 😊

Candypop profile image
Candypop in reply toHungryHufflepuff

Hi, thank you, I hope you are doing OK, stay safe.

O2Trees profile image
O2Trees

Hi Sue, welcome! If you can get referred by your GP to pulmonary rehabilitation that's the best thing you could do for yourself - a series of sessions dedicated to appropriate exercise and education about self-managing lung conditions, (most are usually people living with copd).

I dont know where you are living and there may be variation over the country during the pandemic. My area - Kent - is still running PR classes - so its worth asking. And the BLF info that CPDO16 mentions above are definitely worth checking out.

If you've only just been diagnosed it might be worth my mentioning that I was diagnosed at moderate stage in 2000 and Im still here in 2020 living a good life. Take care :) :)

Candypop profile image
Candypop in reply toO2Trees

Good morning 😁 02Trees, thank you for welcoming me to this Wonderful Forum. Its so good to hear, you are enjoying life.i have asked my doctor for a referral, just waiting for The Pulmonary Rehabilitation Clinic to get in contact. Take care.

Spacecat1 profile image
Spacecat1

Hi. Candy pop

Welcome. I have had COPD since 2008.i was able to carry on working g. I became really poorly rushed into hospital.i had been having problems not breathing properly. My lungs were slowing down and it turned out I was retain g CO2.d wea a mask overnight and during the day. The worse thing was having to gi e up work. I love my work looking after children.but trying to chase them was hard

I attend rehab classes to help with my exercise and breathing and meet other people in the same boat.whichis great fun

Do you use In halers or oxygen.

You do learn to live with it and make sure you have family or friends to support you also if you are having to give up work make sure you get benefits to help you. Take Care x😄

Candypop profile image
Candypop in reply toSpacecat1

Good morning Spacecat1 thank you for welcoming me. I'm so glad you are able to go to Rehab classes, and meet others, it's such a shame you had to give up work. I'm using an inhaler at the moment, and I'm waiting for my referral for Rehab, take care.

Alberta56 profile image
Alberta56

Welcome to the forum.

Candypop profile image
Candypop in reply toAlberta56

Good morning Alberta56, thank you for your welcome, Im so happy to have found this Forum, take care.

Spacecat1 profile image
Spacecat1 in reply toCandypop

Take care and look after yourself.

hope you go to rehab

Izb1 profile image
Izb1

Hi Candypop and welcome to the site. There are lots of people on here with different lung conditions and have good advice, so ask away or keep reading the daily posts x

Dedalus profile image
Dedalus

Hello and welcome Candypop

Candypop profile image
Candypop in reply toDedalus

Good morning Dedalus, thank you for welcoming me, I hope you are doing OK.

Catnip profile image
Catnip

Welcome, Sue. We're a mixed bag of sweeties here: the tough nuts, the justplain nuts, thesherbet lemons that fizz, the red lips and the humbugs. We've got poets, storytellers, photo addicts ... dogand/or cat people ...

If nothing else, you will be entertained and learn stuff. Shoulders back; head straight: quick march..

Marjie

Candypop profile image
Candypop in reply toCatnip

Good morning Catnip. Its certainly a beautiful morning blue skies and sunshine here. Thank you for your warm welcome 😁 this Forum is just what's needed, I shall certainly be reading post, and it's so good to know that support is here, thank you, take care.

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