I am on Nintedanib for IPF. What’s best for breakfast?

[Leenane]

I am on Nintedanib as I am an IPF patient and am type 2 diabetic. I take my medication with breakfast. I have fruit & porridge for b/fast but sometimes get diarrhoea. Any other recommendations for breakfast please to try to avoid the diarrhoea?

[jmsutt73]

My nurse educator who instructed me on how best to take Ofev to prevent the common side-effect of bowel issues said to eat a healthy portion of protein each time you take the medication. In the morning, I have my largest meal which consists of two pieces of bacon, two eggs, a pc of buttered toast one cup of coffee. I take 2 Ofevs daily, 12 hrs. apart. Just before taking the 2nd dose, I eat a piece of beef, chicken, pork, or turkey the size of my palm, steak, meat loaf, burger. It is, she said, very important to have the protein with the first and second daily dose. I hope this helps. J

[Leenane in reply to jmsutt73]

Thank you very much indeed . That is very helpful.

[Suzie42 in reply to jmsutt73]

I am really struggling with it all

[Suzie42]

I am diabetic as well and unfortunately have been suffering with side effects from this drug. Diarrhoea being the worse. I cannot tolerate dairy with the drug so I have a non diary alpro yoghurt, which contains protein followed by dry granola for breakfast. I tried eggs etc but made me sick. I have tried to eat as much as possible before taking Ofev but now find it hard. I am now on my 2nd two week break from the drug.

I hope you can tolerate it, my fingers are crossed for you. Take care

[Leenane in reply to Suzie42]

Thank you very much Suzie42

[Suzie42]

I meant to say, I was told not to worry about diabetes as it was more important to get the Nintedanib into my system and when I had got used to it, try and reduce sugar again. Alpro and granola contains massive sugar, but only breakfast I can tolerate.

[peege in reply to Suzie42]

I find Lizzi's granola the lowest in sugar, it contains small amounts of black treacle and rapeseed oil for the crispness and no fruit just seeds which I chew well.

As for the diarrhoea, a French medical herbalist told me of the benefits of finely grated apple - we lived in Africa for years so it was a regular problem. It was miraculous, particularly with the children and babies in nappies where results were 'visible! Might be worth a try for you both. P 🙏

[Suzie42 in reply to peege]

Thank you, I will definitely give that a go. 🤞

[Leenane in reply to peege]

Thank you, I will try it also.

[Aingeful]

I often eat a boiled egg and toast as well as porridge. So far so good re my tablets!

[Leenane in reply to Aingeful]

Thank you very much Aingeful

[Suzie42 in reply to Aingeful]

I'm very pleased for you. I wish I could be like that. Take care

[jmsutt73 in reply to Aingeful]

What are the ingredients in porridge? J

[Leenane in reply to jmsutt73]

The main ingredient of porridge is oatmeal. I make my porridge with milk.

[Aingeful in reply to jmsutt73]

I've just looked at my porridge packet and it says 100% organic rolled oats. Usually,the only ingredient is rolled oats or oatmeal( a finer texture).

[jmsutt73 in reply to Aingeful]

Thanks to all for the information on porridge...