Hi everyone, I have sarcoid pulmonary fibrosis .
Last Friday 9 days ago I got a bad sore throat .by Saturday I was getting waves of high temperature. By Sunday my breathing ( usually oxygen 24/7. 2 sitting and 4 ambulatory ) was worse. I could not walk more than a couple of steps. My temperature was high.After 111 call taken to a and e. . The doctors agreed it might or might not be covid 19. If I went on ward I could be tested, but ran the risk of catching it or something else. I’m in the extremely vulnerable group. We agreed that I will get better or worse, and to come back if worse. That was Sunday night. I’m on mycophenalate which some research has shown to block the virus somewhat, but it might not. A lot seems dependant on personal genetic make up.I now think I’ve got it. I get waves of coughing, sore throat and high temperatures , breathing a lot worse than usual
Some things you read says some people never know they have had it. Some are unwell for about 5 days. It seems often that symptoms are mild for 5-12 days, even longer and then it kicks in with a vengeance.
So I’m sitting here with mild symptoms,.i can walk a bit in the morning, today all over wash and washed hair. But then I get exhausted and go back to bed for the afternoon , usually having a sleep.
Just curious , anyone else dealing with this at home , or had it and recovered. How do you know when you are past the worst?
I have self isolated for 4 weeks now, so don’t know how I’ve got it. But staying with daughter and family, so 7 of us. We keep cleaning hands, surfaces etc.
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