12 week isolation letter : Please can... - Lung Conditions C...

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12 week isolation letter

Kcn3 profile image
Kcn3
26 Replies

Please can someone tell me where this letter is coming from. My daughter has just started being under the brompton as well as the local hospital. The brompton have called her to say she is in that catagory and it will be coming from the local hospital. Ive called them and they say no they're not doing them it's the gp. I've called them to and guess what no not them either.

My daughters condition is quite rare and she is concerned she will be overlooked and not get 1 at all.

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Kcn3 profile image
Kcn3
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26 Replies

I’m the same as your daughter ie RBH & local hospital. I’ve had texts & letters from

NHS & understand the information was provided by my surgery. In fact I’m pretty sure this is the case.

Kcn3 profile image
Kcn3 in reply to

She has had no texts or letters from the nhs, which is adding to her concern that shes lady in limbo between services

In the meantime you can register your daughter here gov.uk/coronavirus-extremel...

Kcn3 profile image
Kcn3 in reply to

Hi yes shes already done that. 👍

Denae011 profile image
Denae011

Hi my letter had my gp surgery address on it. I think everyone is supposed to have them by the 29th of this month.

Kristicats profile image
Kristicats

I had a text from nhs corona virus service followed by a letter from my surgery a few days later.

Derek profile image
Derek

I believe both the following will be helpful:

nhs.uk

and

nhs.uk/nhsapp You have to register and provide photo evidence (passport or drivers licence). There is a 4 day wait owing to demand while they access your docs. I’m waiting and will then find out if l’m on the essential list.

alyvonne profile image
alyvonne in reply toDerek

Thank you have registered my husband. I was already registered somehow and went on and found my repeat prescription. Thank you once again . Keep safe

Derek profile image
Derek

Looks as if the nhs addresses l gave you are missing the prefix ‘

Kcn3 profile image
Kcn3 in reply toDerek

Let me know how you get on. My daughter is wary in case it is a scam website been set up and if it is they will steal your identity.

Derek profile image
Derek in reply toKcn3

Hi, my daughter (staff nurse) has confirmed the website & App are authentic. I have also contacted the actual NHS website this morning, which you can go to on here, and l’m awaiting their response. Hope this puts your mind at ease. You are right of course to query anything received from the World Wide Web.

Stay safe & l will also advise the NHS response.

Derek profile image
Derek in reply toKcn3

If anyone has a query, at the start of this forum you’ll see a small box stating ‘Latest NHS advise’, click on that and look for NHSAPP. Click on this and you can ask for advise - this is what l have just done to confirm the two websites that have been queried. At my age 79 and probably most of us here, it is easy to forget genuine information we may have received earlier.

Kcn3 profile image
Kcn3

It's so frustrating, with 2 hospitals and the gp all saying g it's not them

Derek profile image
Derek

Understand your concern. As my daughter and granddaughter are nurses l will confirm with them tomorrow and get back to you. I will also check with another reliable source.

gemma29806 profile image
gemma29806

I got a text from U K Gov telling me to stay at home. It says more info at U K /coronavirus

Kcn3 profile image
Kcn3 in reply togemma29806

Yes that was a blanket text sent by the government to every mobile phone

Joinery123 profile image
Joinery123

Hi

I know exactly how your daughter is feeling. I have ABPA, asthma, pseudomonas and bronchitis and haven’t received a letter. I have absolutely no idea where it’s coming from or indeed if I’ll get one. So frustrating when people say “On it’s not us it’s them”. Just do as I’m doing self- isolating because I know that I’m at serious risk.

I hope your daughter gets her letter soon.

Take care

greatauntali profile image
greatauntali in reply toJoinery123

I am beginning to doubt that this letter is coming. I have very severe COPD and just came out of hospital 2 weeks ago but I have had no letter. Maybe the fact that no one expected me to survive has something to do with it in my case. :)

Kcn3 profile image
Kcn3 in reply togreatauntali

That's probably not the case at all. It seems that lots of people haven't got the letter. Perhaps we should contact the bbc to highlight this?

greatauntali profile image
greatauntali in reply toKcn3

That might be an idea. Maybe they have abandoned the idea altogether as they have been overtaken by events?

Kcn3 profile image
Kcn3 in reply togreatauntali

I have just found but it wont load the screen shot, on gov.uk, that if anyone who hasnt received a letter by the 29th to discuss concerns with gp or hospital clinician..

So back to calling the same people again next week!

Joinery123 profile image
Joinery123 in reply toKcn3

That sounds like a really good idea 💡

Joinery123 profile image
Joinery123 in reply togreatauntali

I know! This is a very stressful time. However, you have survived and will continue to do so. I feel really stressed and frustrated- looking for the letter that isn’t coming.

Take care and isolate.

dmf64 profile image
dmf64

My letter came from NHS England along with text messages to tell me i was at risk. Have you received the texts? I know a few people from my PR group have not got the letter but have the text messages.

stay safe

Kcn3 profile image
Kcn3 in reply todmf64

No she hasnt had any texts apart from the 1 the government sent out to all mobiles.

But she had a call from the bro.brompton saying she was in the at risk catagory.

panda22 profile image
panda22

My letter came from the NHS. I have also had 5 text from them

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