what is the treatment for auto immune disease in UK

[rodders1941]

autoimmune query

[Hidden]

There are many autoimmune diseases, which one did you have in mind? I have RA, Sjogren's Syndrome, IBD and Vasculitis.

healthline.com/health/autoi...

[rodders1941 in reply to Hidden]

hi thanks for your reply my illness is pulmonary fibrosis secondary to connective tissue disease lv had it for a year in that time lv only been treated with steroids , is thy is parr for the course. rodders

[Hidden in reply to rodders1941]

Sorry, but I wasn't aware it was autoimmune. I'm afraid I don't know anything about it. There should be info on the blf website, blf.org.uk

[rodders1941 in reply to Hidden]

hi lm sorry you received my email , lv just joined the site

and lm having difficulties getting it right. god bless rg

[Maureenpearl]

Hi rodders1941,

Your Gp should have referred you to a Rheumatologist who will do blood tests and examine you because of your connective tissue disease (autoimmune disease) and then decide on the best treatment for you.

There are several different treatment which your consultant will decide on the best one for you along with frequent blood monitoring.

Please join the Lupus community. click on My hub.

God bless and we will continue to pray for healing.

[rodders1941 in reply to Maureenpearl]

Maureen my consultant kept me on steroids and told me to come back in 10 months time

thats why l need a little more information . god bless Rodders

[Maureenpearl in reply to rodders1941]

Is the Pulmonary Fibrosis causing you any problems?

I see two consultants together.

I see the Rheumatologist and a lung consultant so I go to a combine clinic and the two consultants decide which treatment would be best suited for me and I will also ask if they will try something new that I may have read about.

If you feel you need to see a doctor you can see your GP or ring the consultant's secretary for her to speak to the consultant or send you another appointment.

The hospital might even have a Rheumatology Nurse that you can ring for advice.

Hope this is useful.

God bless.

[rodders1941 in reply to Maureenpearl]

thank you . its very kind of you to offer sound advice, l will take it ! Rodders

[rodders1941 in reply to Maureenpearl]

Maureen hi please excuse my ignorance when you say click on my hub lm not sure what you mean

Rodders

[Maureenpearl in reply to rodders1941]

Don’t worry about it now because you are on the lupus and lungs community site. You will only see the hub if you are on a computer.

[rodders1941 in reply to Maureenpearl]

Maureen thank you for your reply , the hospital l go to the secretaries are not very helpful, lv just had a lung function test ,this l hope goes to the consultant at the hospital,hopefully he will call me in,its then l need to have all my facts right, about

treatment of my condition . Maureen l dont seem to see my views on the big site

am l at fault my end. god bless Rodders

[Maureenpearl in reply to rodders1941]

Yes, Rodders, hopefully you will get an appointment soon now you have had the lung function test.

Your post was 4 days ago, look for that or put your name in the search and it should come up with you and all that you have posted. You should have an email telling you I have replied click on view and it should take you to it on your computer.

Have a great day.

God bless 🙏🏽

[rodders1941 in reply to Maureenpearl]

Maureen hi, just looking through my old replies , 2 weeks ago l had another appointment given me for 6 months time ,all the other appointments have been no less that 3 months, is this a average length of time for appointments or am l being kicked into the long grass, look forward to your well informed opinion. take care Rodders

[Maureenpearl in reply to rodders1941]

This is normal usually about 4-6 months for me. You also have to remember they have to rearrange how to see patients safely. Your consultant would have seen the LFT result and if there was vast changes would have seen you earlier.

Stay safe.

God bless

Maureen 🙏🏽❤️

[rodders1941 in reply to Maureenpearl]

Maureen l think lv messed up a email to you sorry if you recieve it , here goes again, seems l will have to wait 6 months Hmmm very frustrating

lm trying to get down to 2 preds a day if l make it and l feel almost o k

l will stick to it, just need another 10 years l can live with that .

thanks again for reply. take care Rodders