Oxygen issues

[carolg1]

Hi everyone as a lot of you know I have terrible mucus problems esophugus plus lung or sinus no one seems to know exactly where it’s coming from , I’m on 2L oxygen 24/7 for past 12 months which seems to have made matters worse my nose is either blocked or bone dry n bleeding or it’s running it’s constantly bugging me any help out there my throat is constantly clogged up either the stuff I’m so miserable as it’s not helping my breathing...... thanks

[HungryHufflepuff]

I don't really know anything about this but it surely shouldn't be making you miserable and should be helping matters. I expect you'll get some helpful replies unlike mine, but I just wanted to wish you all the best. Thinking of you and I hope things start to improve for you soon 💐

[y_not]

Hi, I'm probably a mile off the mark but I use Carbocisteine to loosen the mucus and a Flutter device to release/move the mucus.

Some seem to be able to get these on the postcode lottery NHS whilst others have to buy them. Link: amzn.to/2lZncDl - be aware that this is the first one I found - there are lots cheaper and just as good.

Best wishes

[Mooka]

Hi carolg1 do u have an ENT doctor? Maybe your sinuses are blocked and that’s causing your problems. A ct scan of your sinuses would show up if this is the case and can b corrected. X

[carolg1 in reply to Mooka]

Hi Molokai thanks for replying yes I am seeing Ent at the moment that is certainly what it feels like to me all at the back of my nose x

[Mooka in reply to carolg1]

I’ve suffered with this for years. Sinuses are often start of chest infection. I’ve had my sinuses washed out twice and they widen the tubes. Last time certainly helped. I assume you are using a sinus rinse? I hope you get some relief soon x

[carolg1 in reply to Mooka]

Hi monks what does having your sinuses washed out entail and widening because I’m sure this is what I need, things have got a little better since I’ve been doing a couple of sinuses rinses myself but still feels really blocked deep down , thanks for replying xx

[Mooka in reply to carolg1]

nuffieldhealth.com/treatmen...

I hope this explains it without scaring you off! Mine were done under general anaesthetic so you don’t know anything about it. Nose feels blocked for a week or so afterwards as they don’t like you to blow your nose.

You should definitely try using neilmed sinus rinse daily. I also use nasonex daily only available on prescription. I was also prescribed flixonase to use daily. You will need to have a ct scan on your sinuses to show they are blocked. I think you would need to show your ENT doc that you are rinsing daily and still uncomfortable to be taken seriously enough. Steam inhalers can also help. I use a nebuliser daily for antibiotics and steroids as I have pseudomonas(found during last sinus wash). This has helped keep mine clear. Good luck. X

[carolg1 in reply to Mooka]

Thanks so much this really does help xxx

[jmsutt in reply to carolg1]

Hi Carolg, when I first begin to sneeze and "stop up" from excess mucus, I begin eating fresh pineapple, and it works to stop the mucus production. Pineapple contains Bromelain, which is used in some prescribed medications. It is also used as an anti-inflammatory prior to surgery to reduce swelling. Hope this helps. J.

[carolg1 in reply to jmsutt]

Hi j yes I have tried this once but maybe I didn’t give it long enough I will give it another try thank you x