Am new to this site am very lucky that a friend told be about it.
I have LAM and have had it for 7years now was completly unaware i was ill until i had a spontaneous collapsed lung on New Years day 2014. Had lots of tests and went to the QMC in Nottingham where the LAM centre is and they tryed a drug that they hoped would slow the disease but sadly it appeared i had, had LAM for 10 years before i was ill and diagnosed so the drug treatment sadly did nothing.
So am now on the list for a Double lung transplant and was listed in March 2015 and have had to false calls in 2015 but nothing since. I visit my transplant centre every 3 months which is the QE in Birmingham have a great team who are just so supportive to myself and my family but have lately been wondering if my time will ever come. But as my partner said you have to be in it to win it.
So with loads of love and support am hangin in there and waiting for my gift to come.
Am very much looking forward to making new friends on this group and having advice from people in the same situation. Not being able to breathe is certainly one of the scariest feelings in the world and i think until it happens to you no one truly knows what it like.
Look forward to hearing from you all. X
in a bit of quandary 
Having a bad day, appreciate any advice
Feeling a bit Hopeless
Lung transplant 
