Feeling overwhelmed and scared - Lung Conditions C...

Lung Conditions Community Forum

55,600 members66,305 posts

Feeling overwhelmed and scared

Loki19 profile image
54 Replies

My mum was admitted to hospital recently with a pain in her stomach, following an X-ray and CT they discovered a twisted intestine which was also inflamed anyway that was sorted out and once again mum was fine. The scary bit is the X-ray and CT showed a mass in her lung, some suspicion with her spine and unusual lymph nodes??! Mums had a MRI on her spine and has a lesion which is not yet impacting her spine so the doctors aren’t overly concerned at present. She has a 4cm lump? On her upper right lung which they are having a biopsy on next Thursday. Mum had breast cancer nearly 10 years ago, so the doctors aren’t sure at this stage if it’s breast cancer, primary lung cancer which I’m assuming has spread to bones or something else? It’s quite overwhelming trying to take this all in as since mums hospital admission she’s back to her normal self with no unusual aches or pains (mum has rheumatoid arthritis which is well controlled). Just wondering if anyone has any advice/opinions on what we can expect.

Written by
Loki19 profile image
Loki19
To view profiles and participate in discussions please or .
Read more about...
54 Replies
annienell profile image
annienell

Oh dear, how worrying for you. I'm pleased your mum's back to her normal self after that scare and I'm sorry I can't help with advice on this. I'm sure someone with more knowledge will be along soon. Sending you and your mum much love and will be thinking of you. Keep us posted!

Annie :)

Apologies for mistaken identity, but still empathising with your situation and hope things get better for you both.

CELAT06 profile image
CELAT06

Oh dear, you must be so worried, I can't really give any advice on this but hope things turn out well and she doesn't have to face any more problems, Thinking of you both, sending love and good thoughts. XXX

Fleurbaby profile image
Fleurbaby

No. Fingers crossed 👍❤

Damon1864 profile image
Damon1864Volunteer

Hi Carole must be a very worrying time for you, I really hope things start to get better soon my fingers are crossed for you r mum and my thoughts are with you all. Take care and let us know how things are with you both.😊Bernadette xx

Blackbird6 profile image
Blackbird6

Hi all I dont think this sassy is Carol I think its somone else with same user different number apologies if I'm wrong xxx

sassy59 profile image
sassy59 in reply to Blackbird6

You’re spot on Blackbird. My mum passed away in 1991. Xxxx😘👍

Blackbird6 profile image
Blackbird6 in reply to sassy59

I remember you saying and knew the numbers were wrong lol I should be a detective 😂😂

sassy59 profile image
sassy59 in reply to Blackbird6

Nice to be 19 though...lol xx 🤣😀🥰🥰

Blackbird6 profile image
Blackbird6 in reply to sassy59

Give my eye teeth to be there again lol x q

sassy59 profile image
sassy59 in reply to Blackbird6

Mmmm yes, Pete and I got engaged when I was 19. Xxx 😀😘

Blackbird6 profile image
Blackbird6 in reply to sassy59

💞💞💞💞🥰

annienell profile image
annienell in reply to Blackbird6

Well spotted Blackbird - I must be more careful!

Blackbird6 profile image
Blackbird6 in reply to annienell

💞💞

sassy59 profile image
sassy59

Hi all, this is Carole and I’m sassy59 not Sassy19. There seems to be some confusion which I hope can be rectified. Xxx

Blackbird6 profile image
Blackbird6 in reply to sassy59

Mistaken identity Carole 😂😂

Hacienda profile image
Hacienda in reply to sassy59

Hi Carole, think Sassy 19 will have to change her ID, as I also thought it was you, I know your Mum passed long ago. Recently "Breatheasy" changed her ID because of our Beautiful Anne having had a Similar ID. Sorry I have imposed on Sassy 19's Post, I do hope her Mum is ok and Today all went well for her. Sorry I am so late in responding Hun (sassy 19). Love n Hugs to you all & your Mum. xxxxx

sassy59 profile image
sassy59 in reply to Hacienda

Hello Carolina, it’s ok as just a bit of confusion really, no problem.

I’m wishing Sassy19’s mum well and hope things improve for her. Such a worry.

Hope you’re ok sweetie. Love to you and all the family. Xxx 😘💋🥰💖😘

Loki19 profile image
Loki19 in reply to sassy59

I will change my ID if I can fathom out how lol it will make it easier for everyone ❤️

Loki19 profile image
Loki19 in reply to sassy59

I’ve changed my username now ❤️

sassy59 profile image
sassy59 in reply to Loki19

Well done you. Take care. Thinking of your mum. Xxxx

Loki19 profile image
Loki19 in reply to sassy59

Thank you Biopsy tomorrow 😬😬 xxx

sassy59 profile image
sassy59 in reply to Loki19

🤞🏼😘

Loki19 profile image
Loki19

I did wonder why I was being called Carole, apologies to confuse you. I’ve only recently joined.

Blackbird6 profile image
Blackbird6 in reply to Loki19

Sorry to hear of your mums news fingers crossed for some hope 💞💞

sassy59 profile image
sassy59

Sorry Sassy19 things seem to have gone haywire at the moment.

Sorry to hear about your mum and hope she will be ok. Thinking of you all. Xxxx

PosyP profile image
PosyP

Hi Sassy19, please let us know how your Mum gets on. It is awful waiting for tests and results but all you can do is keep busy so the time doesn’t drag. ....PosyP

mikeadams51 profile image
mikeadams51

Good luck to your mum. Hopefully all curable

Loki19 profile image
Loki19

I’ve been reading up on cancer and obviously there’s a lot of horrible stuff out there so trying to not dwell too much on everything until we get the diagnosis. But from what I’m reading if cancer can it be curable? If they think it’s spread to her bones?

Caspiana profile image
Caspiana in reply to Loki19

Hello Loki19 .

Please don't read too much on the internet. Your mum's case will be very unique to her. And yes, cancer , caught early can stopped in it's tracks. Your mum being back to her old self, sounds as though she isn't too fazed and will take this (new) bull by the horns. Please just take it a day at a time. I am sure her medical team are very good and will do everything they can to help your mum get a clean bill of health again. You just need to keep her happy, comfy and occupied. 😊 Sending love and hugs,

Cas xx 🌿🌷🌿🍀🌷🌿

HungryHufflepuff profile image
HungryHufflepuff

I can’t answer your questions (sorry) but just wanted to send best wishes to you and your mum.

Skatergirl1 profile image
Skatergirl1

Sorry I can't answer any questions or offer advice, but sending hugs and best wishes xx

Loki19 profile image
Loki19

Thank you all xx

Izb1 profile image
Izb1

Sorry to hear your news Sassy19 (thats going to be confusing, there has only been one sassy up until now). Its good that your Mum is back to normal and she is feeling ok. I do hope that its in an early stage and can be treated easily, fingers crossed x

Loki19 profile image
Loki19

Thank you all so much, feeling overwhelmed now by the support here. ❤️

katieoxo60 profile image
katieoxo60

This must be very stressful for you right now, not sure what your mum might have to go through so build up your strength for the coming months. It sounds not too good news, but with all these modern treatments things can often be treated that could not in the past. Take care both and good luck for a speedy treatment .

Wellyboot0_0 profile image
Wellyboot0_0

So sorry to hear this hun. I cant really offer you any advice but do hope that you get support and advice and that the news isnt bad when it comes x

FlossyF profile image
FlossyF

I’m thinking of you and your mum. Liz x

mbscbpmbscbp profile image
mbscbpmbscbp

Sassy Sorry but you must leave your treatment to your doctor but personaly if I was in your position I would ask your doctor if a nebuliser with colomycin would be of any help.Or some other drug suitable for your condition and a nebuliser.

Loki19 profile image
Loki19 in reply to mbscbpmbscbp

The doctor will arrange treatment in time I’m sure, we wouldn’t do anything other than leave it to them.

I’m not quite sure what a colomycin nebuliser would do as my mum hasn’t got a chest infection or any symptoms that require medication at this stage. Thank you for your reply though as any response is appreciated.

Lilianne profile image
Lilianne

Dear Sassy 19,

So sorry to hear about the troubles your mum has been having. The thing is to stay positive, which I know is a tall order, but being positive around your mum will help her no end. My thoughts and my prayers are with the pair of you.

Best wishes. Lilianne.

Loki19 profile image
Loki19 in reply to Lilianne

Thank you ❤️

marrigold profile image
marrigold

Sorry to hear about your Mum, all I can say is keep on at the doctors, keep asking them what they are going to do about the mass on her lung, insist that they start treating her straight away, refuse to leave the hospital until they do, it seem these days if you don't insist and keep on at them the doctors put you at the bottom of the treatment list thinking you're not bothered, or that you wont cause them any trouble, they send you away thinking out of sight out of mind, then you can't even get hold of them, instead their secretary keeps fobbing you off saying the doctor is not available, and all the time you are wasting time, time where you could be getting some treatment. Good luck, don't be scared to insist and ask questions about what and when are they going to help your mum.

Marrigold x

Loki19 profile image
Loki19 in reply to marrigold

Unfortunately I learnt this lesson the hard way earlier in the year when my dad had pneumonia. At his 6 weeks X-ray they discovered he had fluid on his lungs and said they’d just refer him to respiratory who would get back to us. The following week I called ACU to say he wasn’t better and was getting symptomatic and they agreed to see him so spent the day with them having tests and some fluid removed for testing and then sent home again with the same we will get back to you. The following week we were back to ACU again as he had difficulty breathing they removed 750ml from his lung and again sent us home!!! The following week is had enough, complained, told the respiratory department I would phone them twice a day until they did something, they agreed to look over his notes and work out what to do, got a call later that day asking me to take dad back into hospital where he was eventually put on a ward (after having drips put into him whilst sat waiting in a corridor) and had a chest drain inserted. They told us the next day he was seriously ill, they took just over 5 litres from his lung!!! He’s home now recovering but at least the respiratory team know us now and recognised us when they came up onto the surgical ward to speak to us all so fingers crossed they won’t pull that one again!!! It’s very much out of sight, then you must be ok xx

marrigold profile image
marrigold in reply to Loki19

That was awful for you all, just keep on at the doctors over your mum's problems now, you seem to be the one to do this, keep on and on, don't leave it even a week. While i was at the hospital visiting a friend there was a man there doing a sit in because they were doing nothing for his mum, so be careful. Best of luck to you all.

Marrigold X

Loki19 profile image
Loki19 in reply to marrigold

Mum is having a biopsy tomorrow, I’m pleased in one way but terrified in another x

ssafa profile image
ssafa

I think we all would be worried at what is happening but, I know its cheesy to say this, but you can only try to worry about what you know not what you think might be happening. Deal with each day and help her to be positive.

Loki19 profile image
Loki19 in reply to ssafa

I’m learning this slowly lol

I am the fixer in the family and I’m out of my depth obviously with this one and have no choice other than to sit back and wait for it all to unfold. My mum is fab she says “ it is what it is” “ when we know we will know what we do to deal with it” she’s amazingly strong I wish I was more like her. X

ssafa profile image
ssafa in reply to Loki19

Take care and be strong for her.

sassy59 profile image
sassy59 in reply to Loki19

Sounds like an amazing lady. Xxx

Scobbie profile image
Scobbie

Fingers crossed and try not to worry x

Glasgowgirl1947 profile image
Glasgowgirl1947

I had breast cancer 30 years ago and have just had 2 heart valves repaired. I think in many ways it's easier for the patient than the relatives. Doctors, nurses etc concentrate on the patient si it can feel bewildering for you. Your mum seems to be feeling how I did on both these serious occasions and her strength will get her through whatever she has to face. I pray that whatever it is it can be treated and cured. God bless. Xxxx

Loki19 profile image
Loki19 in reply to Glasgowgirl1947

Thank you. Mum is amazingly strong and determined so fingers crossed that will get her through this x

gillypotter profile image
gillypotter

Sorry about Mum, but todays' doctors are highly skilled, and they will sort it out now matter what it is, l'm sure.

I have had a twisted intestine, and it was very painful.

Try not to worry too much, especially around Mum.

My thoughts are with you both, keep positive!

Loki19 profile image
Loki19 in reply to gillypotter

Thank you.

I try my hardest to not worry too much and be positive but it’s hard.

I find myself watching her all of the time to see if she’s having any symptoms. I have noticed her sniffing and she’s a bit hoarse but not sure if really new or something I hadn’t really noticed so much before? I gave my mum two ragdoll kittens last year and I’ve got a few of them myself and need to take an antihistamine otherwise I’d be sniffing all day so guess it could be that.

I don’t know how you all cope so well with it all x

You may also like...

Update to Feeling overwhelmed

my chest pain and breathlessness is down to my lung conditions or if I have angina. I attended the...

Feeling overwhelmed

months. The GP has now prescribed Anoro Ellipta which does seem to help a little but has referred...

Any carers out there? Feeling overwhelmed.

condition has predictably got worse. He started ambulatory oxygen a couple of months ago which we...

Scared

Have stage 4 breast cancer which has spread to both lungs and have mental health problems as......

Scared newbie

following day to be told 28th Dec I have a large mass lung cancer. Well to say my world ended is...