Wheezing, fatigue, muscle pain

[Unforgiven213]

Hello. For the past two months i’ve had numerous symptoms in my body but absolutelly no blood test or x ray came back wrong. I have trouble breathing, especially in the morning, but my chest x ray is fine. I have rashes on my body that feel very itchy and that come and go, but my blood tests are fine. I have chest, joint and muscle pains but my heart works perfectly fine. I am out of ideas and I feel very down because of it. Do you have any suggestions ?

[Tilantoe]

Welcome to the site. Could be medication you are on.

[O2Trees]

Have you had any breathing tests, like spirometry or peak flow, Unforgiven? It would be worth asking for this.

You say the breathing is worse in the morning - is it harder to breathe IN or OUT? If it's harder breathing in you could ask your GP about silent reflux (a kind of reflux where the acid gets up into your windpipe and can cause difficult breathing).

Go back to your GP and dont let them fob you off - you need to know what is happening and get proper treatment.

Fibromyalgia is a condition where you have unexplained pain in your body - you could ask your GP about that too. Hope you get an answer.

[Petrie21]

Side effects to medicine?

[Unforgiven213]

No, I am not taking any medicine at the moment. It's harder to breathe in, and that's where the wheezing comes too. Thank you for the responses

[Izb1]

Hi Unforgiven , maybe its an allergy to something, I would go back to the doctor x

[Hidden]

Have they tested you for lupus in the blood tests?

[Hidden]

Mastocytosis or a mast cell activation disorder would fit your symptoms and that your test results are clear. Lupus is also an equally good call as per Littlepom’s reply (ANA/ANCA blood tests are used initially to screen for that although they’re not definitive) and it could also potentially be something tied to your thyroid. But ultimately - as you can see from these replies - there are at least a dozen causes for what you’re describing, and those are just the ones us completely medically unqualified people are coming up with. The only way forward is to get the GP to look harder and keep pushing them to do so. If you haven’t already, I would advise taking photos/video to document your symptoms to help with that, particularly as they’re transient. I would also strongly advise you don’t walk in to an appt and go ‘here’s what I think it is’, though - I’ve found that even if you’re ultimately proven right, it tends not to go down too well in the first instance!

[katieoxo60]

Hello there, it is so frustrating when they say all is well and you feel unwell. Have you seen your blood results? I'm a synic as my blood tests were fine according to Gp when they where not, also it depends what they tested for they only test for what they might think it is and only treat what can be diagnosed with out a doubt and as you see your symptoms could fit a number of diseases. My late freind was treated for many years as mentally deficient, however one day I stumbled on a rare genetic disease that fitted what she told me & I saw. Fortunately a young paramedic beleived me and I wrote it down Hooray at last they realised it was a genetic rarerity and all her family had some form of it and also there was a drug available to lessen the symptoms. So proceed with hope and be persistant if you want correct results. Best Wishes.

[Unforgiven213]

Thanks for all your time. I am currently waiting for mastocytosis results to come in, and i am checking my thyroid on wednesday. I rulled out lupus because I dont have that rash on my face, not sure if I was right in doing so.

[Hidden in reply to Unforgiven213]

You’ve had a hip biopsy? How was it as I’ve heard it’s very painful and this is a likely diagnosis for my daughter, hence why I know about it. Ruling out mastocytosis doesn’t rule out MCAD - exactly the same symptoms, just a different underlying mechanism. There’s currently no definitive test for activation disorder, but treatment is the same as mastocytosis: we empirically started the littleun on high dose h2s and montelukast and have found her symptoms much improved, particularly the respiratory ones that were making her cf harder to manage.

With Lupus, the butterfly rash is very common but doesn’t appear in every case - this was one of the first thoughts before we realised the symptoms are mast cell related with us.