Moved back in!

Hello BLF friends

I moved back on Friday after hospital. It was a long day.

Still squashed on the sofa with an electric radiator, it’s -2 but it’s ok curled up under the duvet.

See who keeps me company, and takes most of the room 😃 I’m joking

She has been a most supportive companion actually.

It’s been nice and warm during the day the sun warms up the room.

I decided to move back to monitor the works so they can get it finished before they closed on the 21st until the 7th!

Friday I have an appointment at the local Respiratory consultant and we’ll decide if I can switch from Prednidone to Hydrocortisone as suggested by the hospital. So I understood it is less damaging but doesn’t have the same anti inflammatory effects. I managed to taper down to 8mg now, it makes me more tired and achy.

I got this respiratory essential oils preparation from the pharmacy which I can massage day and night. It helps me breathe better. It said thorax, solar plexus, back of the neck and foot soles.

I didn’t do the feet because my skin is sensitive there. Anyway I can breathe better.

So busy times here.,

Wishing you well

Fran xx

[megshafer]

You have a most loyal friend.....giving you loving healing purrs....

Take good care of you!!

Meg🎄🎄💕💕

[Hidden in reply to megshafer]

She’s a good furry friend. Thank you, you too 🥳💕

[sassy59]

Hello Fran, I’m awake at 3am because Pete rang me by accident whilst putting his phone on charge! 😂 l can hear you laughing from here!

Aria is so sweet and great company. Hope everything goes well for you and glad you can breathe better.

Petes doing well and improving because he is now back on his pred. They stopped it in hospital and I think that contributed to him feeling very poorly. His sarcoidosis certainly didn’t like it.

You take care. Wishing you well.

Love and hugs, Carole xxxxx

[Katinka46 in reply to sassy59]

Oh Carole, I know I shouldn’t hijack Fran’s post but I am soooo glad that things are looking a little better for you both.

Love 💕 and hugs

Kate xx

Me? I am usually awake at this time. I may drop off again or not, but it all sorts itself out in the longer run of things.

[sassy59 in reply to Katinka46]

Thank you dear Kate. You get some sleep. Xxx 😴

[Izb1 in reply to sassy59]

So pleased to hear that Pete is doing better Sassy, have been wondering how he is getting on, love to you both x

[sassy59 in reply to Izb1]

Thank you, he seems to be on the up. Xxxxx

[HungryHufflepuff in reply to sassy59]

That is really good news about Pete, about him doing better I mean, not phoning you by mistake at 3a.m.! I don’t know why his Pred was stopped but I’m glad he’s back on the dreaded things as it’s helping him to improve (at last!) This really is wonderful news 💐🍇

[sassy59 in reply to HungryHufflepuff]

Thank you HH I’m over the moon Petes doing better. Still fighting infection but......xxx 😘💖

[Carnival567 in reply to sassy59]

I hope you manage to catch up on your sleep 💤

[sassy59 in reply to Carnival567]

I did thank you. Xxxx

[SquirrelsHolt in reply to sassy59]

Sorry I'm another hijacker on happy London's post....excellent news dear sassy59 about Pete and you say he's now back on the pred's which seem to have lightened his mood and he is making progress again. It must be such a relief for both of you. Its great to hear such great news.

Sending the very best of wishes!

[sassy59 in reply to SquirrelsHolt]

Thank you SH, it’s a huge relief. Xxxx

[Hidden in reply to sassy59]

Hello Carole,

I am awake as well..that must have given you a fright! Glad Pete is feeling better.

Lots of love,

Fran xx

[sassy59 in reply to Hidden]

Thank you Fran xxx 😘💖

[Katinka46]

Wow, Fran, all seems a tad better. You complex creature. Hope the meds come up with the goods.

Love and hugs

Kate xxx

[Hidden in reply to Katinka46]

Thank you Kate xxx

[Hidden]

Welcome home Fran. 😃x

[Hidden in reply to Hidden]

Thank you Don !!! Xx

[knitter]

Good to hear from you again.

Best wishes to all including faithful friend Aria.

[Hidden in reply to knitter]

Thank you Knitter xx

[HungryHufflepuff]

It’s good to hear from you. I’d been wondering how you’d got on the 7th at your appointment. It’s great news you’re back home with Aria. She certainly looks very happy! The essential oils sound good 👍 I hope things continue to improve for you. Welcome home 💐

[Hidden in reply to HungryHufflepuff]

Thank you HHp 🌷

[Izb1]

Well, its nice to read that you are back home, even though you are on the settee and Aria looks quite happy. I do hope the works get finished on time and you can be settled for Christmas. The essential oils sounds promising, let us know how you are getting on with them. Will the hydrocortisone be in tablet form? I suppose they will be better than steroids, lets pray they work for you. Take things easy x

[Hidden in reply to Izb1]

Hello Irene,

Thank you 🌼

Well they are steroids but for adrenal glands insufficiency.

Yes I got a box of 100 x 10mg tablets I have to take 2 x 2 a day am before I get up and lunch, 2 for any physical stress from going to the dentist onwards then if I am sick and have a fever I double 3 times a day for 3 days. The injection is for emergency while I go to hospital I expect if I can’t keep any food down, I only have one of those but I need one every 4 hours.

If I have the ok of the Respiratory specialist tomorrow I will start on Saturday. I have been very tired tapering down prednisone. I am on 8 mg and it does nothing for me.

Wishing you well xx

Fran

[Ergendl]

Glad you're back home. It always seems a better place for recovery, in the old familiar surroundings.

[Hidden in reply to Ergendl]

Yes the flat is full of workmen but I am happier! X

[Carnival567]

I’m glad Aria is there to give you healing purrs! I hope you continue to improve xx

[Hidden in reply to Carnival567]

Thank you Carnival xx

[Hidden]

I can see that Aria knows where the heater is. I hope that all goes well with the consultant.

[Hidden in reply to Hidden]

Thank you Littlepom. She sits there yes 😃 clever girl.

Hope so too.

[2greys]

Hi Fran, welcome back home again, even if it is to a sofa and duvet, there is no place like home.

[Hidden in reply to 2greys]

Hi 2 Greys it feels comfy!

Hope you are fine too x

Fran

[Tilantoe]

Glad you are back home. Hope the workmen don't get you down. Stop making brews for them, then they might get on with the job. LOL. At least you have a loyal friend to back you up. Hope new meds work for you. Take care and take it easy. Pat xxx

[Hidden in reply to Tilantoe]

Thanks Pat 😃 I have been making coffee for them when they come in at 8 then I let them get on!

Have a good day xxx

[Hacienda]

Bienvenidos Carino, Welcome back Fran. Hope to see more posts from you.🎅🐱🐱🐱👍xxc

[Hidden in reply to Hacienda]

Hola Carolina so busy between doctors and the flat but at least Mum

is back home safely.

Hope you are well xx

Fran

[Yatzy]

Hi Fran 🎄🎅🏻

I’m so so pleased you’re back home, albeit with a long list of jobs....it will be downhill from here, hopefully 😃

You seem to have your consultants in opposing corners. Do hope this big change works for you.....otherwise you’ll need a third opinion. It’s probably because your condition is so rare. Poor, dear Fran! 🌹🌸🌹

I know you’re not technically asthmatic but I’d hate to be changing my meds while settling into a new home, with maybe dust and new perfumes....even in clean Switzerland, so the very best of luck, my dear friend. Let us know every twist and turn....we’re here for you!

Lots of love from your toothless friend,

Penny xxxx 🥰🦷👀🤶🏻🙆‍♀️🤳👩‍❤️‍👩🦋

[Hidden in reply to Yatzy]

Hi Penny

Yes I have to carry bags of meds honestly I must cost a lot 😃

I don’t know if I have asthma anymore I was diagnosed with severe bronchial asthma before they diagnosed LAM but I hate paint fumes and dust. I air the flat as much as I can. I try to go out and leave them to it!

Hope you feel better with Christmas coming xx

Love Fran 💕

[SquirrelsHolt]

Oh to be home again and the sheer joy of getting into your own bed (with your loyal furry friend Aria). This is all good news Fran. Keep snuggled up in the warm and come back and tell us how you got on with your Resp Con won't you?

Best wishes.

[Hidden in reply to SquirrelsHolt]

Thank you for your kind words Squirrel 🐿 xx

[Damon1864 Volunteer]

What a lovely companion, glad you are feeling better. Stay warm and take care of yourself. Hope your m is doing well. Have a lovely day.

😊Love Bernadette xx

[Hidden in reply to Damon1864]

Thank you Bernadette 🌼🤗xxx

[skischool]

Well happy friend,it is good that you are at home though your settee appears to have grown in length and now fills the room and poor Aria appears to have lost her eyes.What's all this about sensitive feet,get that sorted,didn't the pharmacist tell you we all breath through the soles of our feet?

Ski's and Scruff's bathing in the light of a SAD lamp xx

[Hidden in reply to skischool]

Cheeky skis picking on my photography 😃

My feet are breathing in my wooly socks lol

Enjoy the lamp xx

[Kristicats]

Welcome home. Keep warm and well.

[Hidden in reply to Kristicats]

Thanks Chris x

[Hidden]

So pleased your back home Fran. Take care 😊🎅⛄🎄 Majt

[Hidden in reply to Hidden]

Thank you Majts xx

[Titchykath]

The best place is home 🏡 xx

[katieoxo60]

Hello Fran, thats nice to be back home but not necessarily comfortable. It's minus temperatures over here too I put the chair heat on , plus wheatbag and the large radiator with duvet to keep warm. Hope they finish before Christmas. Love Kate xx