Is it normal???? 🤔

OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed.

I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?

[sassy59]

I would contact a doctor just to be on the safe side. It’s best to ask a medical professional I feel.

Do let us know how things go please. Xxxx

[Katinka46]

You must have a team of doctors and specialist nurses? Can you not contact them?

There are a few here with transplanted lungs but not many.

I hope you get some answers

Kate

[Hidden in reply to Katinka46]

Yes I have a fantastic team at Newcastle who I see every four months I think I will be ringing the transplant team tomorrow if I am still in pain. Thankyou for your replies.

[Hacienda in reply to Hidden]

Hi Hun, You must contact your Transplant Team at Freeman ( A Great Hospital), I am on the QE Birmingham Trx List, My 2 Friends had their Double Trx at Freeman plus another at QE., Lisa had hers 2 years ago also at freeman. Best you call them as soon as you can. My Very Best Wishes to you Hun. Please keep us Updated. Carolina XXXXX

[Hidden in reply to Hacienda]

Thank you for your reply.

How long have you been on the transplant list if you don't mind me asking? X

Emma

[Hacienda in reply to Hidden]

Hi Emma, 2 years and 4 months. Never had a Call. I had Lung Reduction in June with 4 Valves inserted. Trying to keep as Fit & Positive as possible whilst waiting, I'm on Oxygen 16 hours a Day. Hope you get sorted Hun. xxxx

[Hidden in reply to Hacienda]

Wow! That's a long time to be waiting Ill pray you get the call soon!! X

[Hacienda in reply to Hidden]

Thank You Emma, I have been contacted by a Freeman patient recently he had waited 4 1/2 Years, I don't want to be waiting much longer Hun, Time is not on my side. You must get that pain sorted, Your Daughter and Little one's are your inspiration, Like mine are. Just had my Granddaughter here for a Holiday last week. They are Spanish. I wish to be there with them. I await my call every day. Lots of Love and Hugs . XXXX

[Caspiana]

Hi Emma,

As everyone has said, please call your team ASAP. I hope it gets better very soon. xx 🙋

[Izb1]

Hope you made that call ejbid and that you are ok, please let us know. X

[soulsaver]

If you're in the UK, ring 111 the nhs helpline for advice.. I suspect they'll call an ambulance.

Best wishes

[katieoxo60]

If you have not already done so , contact a doctor or 111 for advice. Or attend a walk in clinic if you have one near. If it gets worse call an ambulance