Sarcoidosis and methotrexate

[dogBill]

Hi All,

My sarcoidosis re-appeared with a bang after 40 years. Now on prednisolone and methotrexate. I'm told that the methotrexate takes up to 12 weeks to kick in Week 8 at the moment. consultant is now upping the dose in stages. Is there anyone who has any experience of this. Anything would be of great value.

Many thanks

Bill

[Hidden]

Methotrexate is commonly used for patients of Rheumatoid Arthritis and other autoimmune disesases. I take it myself. It comes in the form of tablets or injections which you can administer yourself after being shown how. You inject diectly into the fatty tissue of either the abdomen or thigh. There are side effects such as nausea.

The following link will take you to the Arthritis Research UK website to dowload a .pdf explaining Mtx. You will need a blood test every 4 weeks to check your liver function.

Methotrexate - Arthritis Research UK

[dogBill in reply to Hidden]

Thanks for that. I found some very old posts on here. Sounds as if most folk are happy using it. Saw the consultant earlier this week and she said to be patient and any improvements would be gradual. At the moment , my breathlessness is not getting any worse, but shying away from saying I'm slightly better

[sassy59]

Hi Bill, Pete has sarcoidosis but has never had methotrexate so cant help I’m afraid. I wish you well. Xxxx

[dogBill in reply to sassy59]

Thanks for all your replies. Had 3 days of improved breathing since i last posted. Hoping that this will continue. I'm now to increase the methotrexate every 4 weeks up to !0 mg once a week. If it has now kicked in I am optimistic breathing will get better. Not expecting to be hillwalking again but moving around without oxygen would be good.

take care everyone

Bill

[Queenbean in reply to dogBill]

My mother has sarcoidosis out of the blue this year she doing cyclophosphamide chemo then going on metrexate her breathlessness hasn’t improved yet fingers crossed it will soon