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Eosinophilic asthma

monju profile image
22 Replies

Hi need some help can anybody please advise if they have Eosinophilic asthma, as not sure what it is and the internet just give me no hope.

Please help

Monju

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monju
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22 Replies
stone-UK profile image
stone-UK

Hi

It seems you would be treated better in Scotland?

asthma.org.uk/get-involved/...

You may find more information on the Asthma U.K. site.

healthunlocked.com/asthmauk

Just click to follow

monju profile image
monju in reply tostone-UK

Thanks will do some reading, links are prescated.

I thought that was brittle asthma NOT 💯 % So could be wrong

monju profile image
monju in reply to

No it's worse. Has notthing to do with brittle as blood related.

Thanks any way

in reply tomonju

The do talk about Eosinophilic asthma when talking bout brittle asthma.

monju profile image
monju in reply to

Thanks will take note just not getting much info on it...

in reply tomonju

Try searching eosinophils predominate.

If I was to stick tail on donky I think in round about way the saying you have lung disease caused by asthma & inflammation.

Generally only women suffer that sub type

monju profile image
monju in reply to

Thanks again, for taking the trouble to reply. Extremely helpful.

in reply tomonju

The say how the going to treat it

monju profile image
monju in reply to

Cheers will do some research on it.

monju profile image
monju in reply tomonju

sorry Jeff was tried and had to get up for work, his not sure if this new will work as mine tobe a bit advanced, there is awaiting list and nice have to ok funding.

skischool profile image
skischool

Monjou,i found this link,you may already have seen it but it appears to give a good grounding into Eosinophilic asthma which is perhaps a route to start your research,

webmd.com/asthma/eosinophil...

good luck and best wishes Ski's and Scruffy

monju profile image
monju

Thank you for taking the time, got alot reading to do. I wish you good health also.

kdr112 profile image
kdr112

Hello monju!

I have eosinophilia asthma. I was diagnosed 2 years ago. Never had asthma before. It is diagnosed by a blood test. Eosinophils are a type of white blood cells. E-asthma results when you have too many.

Don’t give up hope! There are treatments that are effective. I’m in the States but I’m sure treatment is similar.

I take a drug called Nucala. It is an injection given right under the skin and is given once a month. I am about to receive my 5th injection. It is a game changer for many people.

I have chronic sinus infections. My e-asthma often starts after or during a sinus infection.

If you have any questions I’d be glad to answer them.

carolg1 profile image
carolg1 in reply tokdr112

Hi, I have just found out that on my notes it’s says 0.06 eosinophils, and I am just recovering from pneumonia too, but my breathing has suddenly gone really bad which appears to feel like it’s the top of my tummy that I can’t breath through, it’s every time I move it’s awful. Thanks xx carol

monju profile image
monju in reply tocarolg1

Thank you, will take notet

Cooperman43 profile image
Cooperman43 in reply tokdr112

Can I ask when you say a game changer, has the Nucala injections helped with your esinophilic Asthma? I would also like yo know if its reduced sinus infections because I get those to coupled with ear infections. I'm waiting for Nucala treatment so fingers crossed

kdr112 profile image
kdr112 in reply toCooperman43

Yes it has definitely helped with my asthma. I had to have sinus surgery which helped with the infections. After all my sinuses were cleared of infection it has helped keep them clear. I also do sinus rinses with mometasone and saline twice a day. If I start to get an infection my physician adds an antibiotic to the rinse. This is very effective!

monju profile image
monju

Thank you so much, in Britain we have to be put on a waiting list and this can be so long.

just looking for alternative to try and ease, could you please confirm if you get tried so quickly, as I am constantly tried and have to sleep, the consultant says this allows to the cells to repair, I am not sure if he was joking.

in reply tomonju

Hi again lung issues do take it out of you for sure so he was not joking.

If i was in your postion I would ask your doctor few years from now your not going to drop IPF bomb sheel on me are you.

Ask about Monoclonal antibody therapy.

in reply to

As uk is in EU i would not think you would have to wait

lungdiseasenews.com/2018/01...

I would have chat with your lung doctor befoure we leave EU

fiercepharma.com/pharma/ast...

monju profile image
monju in reply to

Ok will do thanls

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