COPD and chemotherapy

[barb63]

My prescription is 16 hours oxygen at 1 litre. After my chemo (for breast cancer) yesterday my oxygen levels have really dropped - after all night on oxygen down to 77. Dropping to 65 if I come off oxygen or walk to the bathroom even on oxygen. Not sure how best to deal with this. Respiratory nurses have not been helpful. Has anyone any similar experience? At the moment I have turned it up to 1 1/4 even though I know this would be frowned on but my oxygen is back up to 86 at rest. Any advice/information would be appreciated.

[Hacienda]

Oh Dear Barb, This must be dealt with. You can call Repiritory or BLF and the Nurse will come to see you . I have never had a Problem with them. If I were to drop to this low on or off my Oxygen, think My Hubby would take me immediately to hospital, even though it's bank Holiday, you have to sort this out...Good Luck Barb. xxx

[Stumpy55 in reply to Hacienda]

Hello barb, how aweful for you. Doesn't sound right at all to me. I agree with Hacienda and call Repiritory or BLF. It shouldn't be left barb, try and get it sorted please? Can you let us know how you get on? I hope you start to feel better soon🤞 take care 🌹xx

[barb63 in reply to Stumpy55]

Thanks for your advice but I think I'll be ok. I have tried to explain to respiratory nurses before but basically they don't seem to believe me and have never been here when it is happening. I will have to carry on using my oxygen as I need it - which at the moment is a lot more than the 16 hours.

[barb63 in reply to Hacienda]

Thank you but I'm ok with oxygen- up to 86 now. There is no way I'm going to a hospital waiting room with my immune system. I do not want to make too much fuss either because I'm scared they may stop chemo which is my main hope at the moment.

[Hacienda in reply to barb63]

I'm so sad for you feeling this way. I understand about picking up Bugs, I wear a Mask in any waiting area. I am waiting for Transplant, we have a lot of worries with COPD. But you have double Worry with Chemo also. Your 02 level has gone up to 86, my Darling that is still low, bit as bad as 65, please never think your making a fuss , our NHS are Superb and would never treat you any differently. If you need to raise your oxygen to 2, do so under these conditions, I am from 1 to 3, mobile, at home I'm on almost 2. Please le 4th us know how you get on. Hugs to you. Carolina xxx

[Hacienda in reply to Hacienda]

Sorry meant "not as bad"

[barb63 in reply to Hacienda]

Thanks again. Good luck with transplant xx

[Susan1200 in reply to barb63]

Hello barb63, i get what to mean about going to hospital ,last time i was at the hospital after 5 hours waiting i was told i had pneumonia and infection i was told i coud go home at that time my Oxygen levels were down tp 75.i never felt so down graded in my life.

Please take care barb63

[barb63 in reply to Susan1200]

Thanks - I am a little better today I think. Been off oxygen half an hour and sats down to 82 which is not too bad.

[Susan1200 in reply to barb63]

I am glad your feeling a little better today barb63,do you have an oyimeter ?

[Susan1200 in reply to Susan1200]

I still think 82 Oxygen levels are low, so I was told people with COPD. 88 Oxygen levels is the minimum.

[belzy]

Barb63 hi my freind i hav copd + osteoarthritis in me left leg,i woz on number 2 oxygen 10_15 hrs a night but i started usin it durin day mor + mor coz at last i woz actualy movin further than bed 2 commode,its ended up 24/7 i use it now + my latest appt.wiv me consultant she said it seems 2 hav improved ur quality of life( i hav only 30% lung function) so use it how u need it as long as its never less than 10hrs coz strain on hearts 2 much,so all i can say is if its improvin ur mobility + ur well bein its got 2 b a win win hunny x ring 111 2 check if its safe maybe then take it from there maybe x good luk m8 x🌟🌞🌻🤗🤩😘💋💓🛴♿💙💎🎶🧚🌺🎠🇬🇧😷👌🏻😍

[donut43]

This sounds bad. See the Resp team and doctor soon as poss. Could be due to hot weather?

Dan

[barb63 in reply to donut43]

Starting to think its normal for me. Will keep an eye on it.